I'm curious to know if anyone here is still taking thiamine and if so how much.

Thanks,
MD

A lot of folks on Health Unlocked PD forum seem to be having very favorable response to Thiamine, mostly in pill form. Some are using thiamine injections. I tried thiamine injections 3 times and felt worse. It made me tired, irritable and with a headache each time it was given. I gave up on it. I tried high dose thiamine supplements for 3 months and never saw any improvement. Though lately I'm thinking of giving another try. As for injections, I understand they sometimes use aluminum as a stabilizer/preservatives in in injectable liquid thiamine. Maybe that is the reason I found it intolerable.

Worth trying for 6 mo's? Recommended dose up to 400 mg day.



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Certainly a lot of information- but , I read your post to say you hesitate to try it yourself...would you care to share your concerns Ashley? For me I feel a bit reserved because it seems to me that whenever people get into micromanagement of symptoms especially with chemistry eventually other imbalances develop that lands a person deeper in a negative feedback loop. Having said that I rely heavily on a couple of supplements targeted at specific symptoms and am very very grateful for their efficacy.

Kind Regards,
MD

Well, we tried this several years ago and noticed not one bit of change. The hardest part was finding a doctor willing to script it, because our neuro was unwilling for whatever reason.

It isn't easy to stab yourself (or loved one) with these B1 injections day after day after day, so if you're going to try this, you might want to get mentally prepared!