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04-11-2016, 05:58 PM | #11 | ||
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I understand the balancing concept and that it is individualized. But I can't seem to get past the idea that these are still at toxic levels. My concern is what are the effects of high amounts long term? Will it hurt your sister long term like I believe l-dopa does. Just wondering. |
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04-11-2016, 06:35 PM | #12 | ||
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I certainly don't claim to have all of the answers on this. Here is a quote by Dr. Hinz: “The hypothesis is that the majority of side effects and problems observed during treatment of Parkinson’s disease with L-dopa are caused by mismanagement of the amino acid precursors and systems affected by L-dopa.” Here is a link to a document with a lot of information: http://healthyselfnow.com/parkinsonstx.php. Dr. Hinz proposes that those side effects are really from the Carbidopa and the imbalance in neurotransmitters - not the L-dopa itself. While there is certainly a risk in taking large quantities of these supplements, each of us must weigh the pros and cons. For my sister, her parkinsonism had progressed to the point that she was having trouble eating and truly was not long for this world if she continued heading in the direction she was going. It was her last resort and, praise God, it is working for her! The bottom line is that you could always try amino acid therapy to see if it works for you. You would have to be fully committed for probably 6 months, as it takes that long for some people to find the right doses - and then even longer to fine-tune. From my understanding, the earlier in the disease progression you try it the better. I wish you well, SueC |
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04-12-2016, 05:06 PM | #13 | ||
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Hi Sue --
Was your sister on Sinemet before starting the Hinz protocol, and if so, did she titrate off Sinemet. Many thanks for sharing your experiences.
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Looking for different options for my mom, born 1946 and dX with PD in 2010. |
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04-15-2016, 12:32 PM | #14 | ||
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There is no need to titrate off since you are replacing l-dopa (sinemet) with l-dopa (mucuna). L-dopa is still the gold standard. You no longer take carbidopa but instead take 5-HTP for nausea. It will take a bit to find the correct dose of mucuna. I felt better on day one but it took a few weeks to dial it in. I've heard of others taking months. I talked about it on the other thread on the Hinz protocol. http://neurotalk.psychcentral.com/thread230756.html |
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05-02-2016, 09:15 PM | #15 | ||
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05-19-2016, 03:07 AM | #16 | ||
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Did your sister have parkinsons ?
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05-23-2016, 06:50 PM | #17 | ||
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Hello Dottee,
I'm afraid I can't give you a simple answer on this. My sister's actual diagnosis was originally dystonia. (You may or may not know that dystonia can be its own entity or be a symptom of Parkinson's.) Things progressed slowly for her over time. Her symptoms (tremor, rigidity, slow movement, etc.) were made worse by Cogentin, an acetylcholine uptake inhibitor. All of her neurological symptoms were exacerbated by a toxic reaction to Cipro, a fluoroquinolone antibiotic. Prior to Amino Acid Therapy, the last neurologist that my sister saw labeled her as having parkinsonism. (Her symptoms looked like late PD, with minimal ability to do anything for herself - but walking for short distances with a lot of freezing.) Dr. Stein, the doctor with whom we have worked for the AAT/Hinz protocol, said that she would be "uncharted territory" for him - as she didn't have a diagnosis of pure PD. Evidently, in her case, as in with PD, the root cause of her symptoms was a relative nutritional deficiency with a resulting imbalance in the neurotransmitters. Sorry if this is more than you asked for, Dottee. I just wanted to be clear that, while my sister presented as someone with PD, that was not her actual diagnosis. Blessings, Sue |
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"Thanks for this!" says: | ASUNAGULLO (09-13-2017) |
05-23-2016, 07:39 PM | #18 | ||
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Apologies for chiming in so late on this topic. I have the patience of a 2 yr old so correct me if I'm wrong here and your sister has taken this but has a neurologist or movement disorder specialist given her what we call here a Sinemet challenge test? It fairly swiftly gives an answer when there's a question mark on a diagnosis of P.D. By Sinemet challenge it can mean Madopar or any other generic tablet which consists of approx. 50 to 100mg Levodopa. The relief of PD symptoms can be remarkable with this test and if it does bring relief you at least know then and have a firmer though still not 100% accurate diagnosis. Best wishes |
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05-23-2016, 09:35 PM | #19 | ||
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I hope this answers your question. Blessings to you and yours, Sue |
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"Thanks for this!" says: | ASUNAGULLO (09-13-2017) |
05-24-2016, 01:03 AM | #20 | ||
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Magnate
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Validity of mortality data for Parkinson’s disease i think one has to be very skeptical of hinz's conclusions. and without carbidopa, one had to take grams of l-dopa, not milligrams, which must have made a l-dopa rx very expensive. just my opinion. |
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