Sue, do you mind telling us exactly what your sister takes and how much?? Just curious.
thanks!

Hello TryingMyBest,

No, I don't mind at all. I just want to give this disclaimer: Dosages will be different for different individuals. Unfortunately, adding to the expense of this protocol, it is essential to work with a doctor who is trained by Dr. Hinz.

Her current dosages are: 28.8 g mucuna, 8 NeuroReplete, 6 CysReplete, 1 RepleteExtra, 800 mg B6 and 52.5 g tyrosine.

It has been a process getting to this dosage and my sister is still fine-tuning her dosages to find the "sweet spot," as she calls it. It took ~2 months to see changes initially (although the anxiety that she suffered as a result of a toxic reaction to the antibiotic Cipro resolved within weeks!) and another 2 or 3 months for her to get to the point of independence. I would imagine with lesser symptoms that the dosages would be much less and, perhaps, the time for the switch to flip would be shorter - but I am not sure of these things. I do know that my sister's doctor, Dr. Stein, had said that he wished he had heard from her sooner.

I hope this helps. As I have said in other posts, the cost is high and it is not convenient all the time, (my sister takes her mucuna mixed with water in 6 separate doses throughout the day,) but it has given my sister her life back.

Blessings to you and yours,
Sue

Hi Sue,
I understand the balancing concept and that it is individualized. But I can't seem to get past the idea that these are still at toxic levels. My concern is what are the effects of high amounts long term? Will it hurt your sister long term like I believe l-dopa does. Just wondering.

Hello Again,

I certainly don't claim to have all of the answers on this. Here is a quote by Dr. Hinz: “The hypothesis is that the majority of side effects and problems observed during treatment of Parkinson’s disease with L-dopa are caused by mismanagement of the amino acid precursors and systems affected by L-dopa.” Here is a link to a document with a lot of information: http://healthyselfnow.com/parkinsonstx.php. Dr. Hinz proposes that those side effects are really from the Carbidopa and the imbalance in neurotransmitters - not the L-dopa itself.

While there is certainly a risk in taking large quantities of these supplements, each of us must weigh the pros and cons. For my sister, her parkinsonism had progressed to the point that she was having trouble eating and truly was not long for this world if she continued heading in the direction she was going. It was her last resort and, praise God, it is working for her!

The bottom line is that you could always try amino acid therapy to see if it works for you. You would have to be fully committed for probably 6 months, as it takes that long for some people to find the right doses - and then even longer to fine-tune. From my understanding, the earlier in the disease progression you try it the better.

I wish you well,
SueC