https://blab.im/brainbodywellness-br...rt-brainbody-1

Interested in what anyones thoughts are on the video and what he says. I am undergoing the treatment for TBI, but thought since he discusses Parkinsons extensively in this video, that it could be of value to some of you.

Thanks for posting this! It is all good information and helpful for those who want some contact information. (There are website links and a phone number on the bottom right corner of the screen.) Like Dr. Hinz says, there are a lot of published papers about Amino Acid Therapy. He has been working on this for 18 years. It has changed my sister's life - so I am thankful for anything that gets the word out to others. For all of the naysayers - you need to look at all of the published data that is available.

as far as i can tell, all the published data you refer to originated from people who have a financial interest in the company. this is a very expensive, very complicated treatment that has not been independently tested. videos, anonymous patients are not at all convincing to me.

just my opinion.

Soccertese,

You are right. This is expensive - although I would not say all that complicated. My understanding, however, is that without insurance, PD meds run ~$1000/month. At least that is what someone I met who has to pay for his meds pays. The supplements for Amino Acid Therapy are not nearly that much.

Dr. Hinz publishes the knowledge he has gathered. Traditional medical practices will never embrace this treatment; it is too time-consuming and most people just want the quickest fix, which this is not. And Big Pharma can't make money selling supplements so, of course, they are not interested in doing any research into this treatment. (If you look at published drug studies, by the way, you usually don't have to look too far to find significant conflicts of interest.)

It has been encouraging for me to read of others ("anonymous patients," as you call them) who have been helped by this approach. No treatment is perfect for everyone. In the case of my sister, however, Amino Acid Therapy has been nothing short of miraculous! (This after trying every other option we could find and actually being harmed by prescription meds.) It has given her quality of life again! I will continue to tell everyone I meet about it in hopes that it might help someone else.

Best regards,
Sue
(the sister of a REAL patient who has TRULY been helped in a marvelous way using Amino Acid Therapy)

i'm always a skeptic, can't help it. i agree that big pharma wouldn't want to investigate a similar protocol but it's not impossible to raise funds and find a researcher who would test this procedure or at the minimum interview patients who are taking these supplements and do case histories and possibly interview their neuros and write up a report. i participated in a small clinical trial conducted at a university to test forced exercise, their budget was below $$50,000. It wouldn't cost a fortune to hire an independent investigator to follow 10 verified pd patients who were on conventional meds and have the investigator observe how they do on the HINZ protocol and write up a report. they would need a neuro involved to test the patients and permission to see their medical records. ain't going to happen.

i think there is a huge conflict of interest when a doctor sells proprietary supplements to a patient, especially when the patient has to buy those supplement forever. in most cases, doctors don't sell drugs to patients, there is a conflict of interest plus for most drugs the reimbursement by insurance is so lo'w it wouldn't make sense. you have indicated you buy your mucuna from someone else but i assume you are the exception

you state your sister was harmed by conventional meds, may i ask what they were, the dosages and the harmful affects? all pd drugs have potential side affects and i'm not going to defend any of them except carbidopa/levodopa.

the monthly cost for pd drugs could be $1000/month if you are taking non-generics such as azilect and rytary. if you are just taking generic carbidopa/levodopa i think the private monthly cost would be less than $300, maybe even $200, this is a very cheap drug.

for me at least, with all the pd support groups out there and the internet making it easy to compare notes and find info, with the MJFF, other pd organizations and individuals funding research on alternative pd treatments - exercise for example, dancing, boxing - you can't patent that - there's no good reason why the HINZ protocol hasn't been independently tested.

if you study the history of treating parkinson's, there has been research on taking vitamin c, vitamin e, coq-10 and amino acids. maybe noone has done exactly what HINZ has done but everything under the sun was tried to treat pd, patients had a very bleak future.

I think we will just need to agree to disagree on this. No number of studies one way or the other will change the fact that this treatment has helped my sister and many others. (For the record, I am a health care professional - so I am not ignorant of these things.) Everyone needs to decide for himself/herself what treatment to use. My family and I will always be thankful for Dr. Hinz and Dr. Stein and the work they have done. It has truly given my sister her life back!
Blessings to you and yours,
Sue

I disagree, the FDA looks at two things in evaluating a new treatment, efficacy and safety. At the heart of things our approach is L-dopa, there have been hundreds of L-dopa studies since 1960. How many L-dopa studies do you need. We are not claiming we have improved efficacy, L-dopa efficacy is proven. We do claim we control side effects which in the past caused patients to not get enough L-dopa in for optimal relief.

Did your sister have parkinsons ?

Hello Dottee,

I'm afraid I can't give you a simple answer on this. My sister's actual diagnosis was originally dystonia. (You may or may not know that dystonia can be its own entity or be a symptom of Parkinson's.) Things progressed slowly for her over time. Her symptoms (tremor, rigidity, slow movement, etc.) were made worse by Cogentin, an acetylcholine uptake inhibitor. All of her neurological symptoms were exacerbated by a toxic reaction to Cipro, a fluoroquinolone antibiotic. Prior to Amino Acid Therapy, the last neurologist that my sister saw labeled her as having parkinsonism. (Her symptoms looked like late PD, with minimal ability to do anything for herself - but walking for short distances with a lot of freezing.)

Dr. Stein, the doctor with whom we have worked for the AAT/Hinz protocol, said that she would be "uncharted territory" for him - as she didn't have a diagnosis of pure PD. Evidently, in her case, as in with PD, the root cause of her symptoms was a relative nutritional deficiency with a resulting imbalance in the neurotransmitters.

Sorry if this is more than you asked for, Dottee. I just wanted to be clear that, while my sister presented as someone with PD, that was not her actual diagnosis.

Blessings,
Sue

How was she harmed by prescription meds? I have always assumed that when you stop taking a drug the side effects stop. I guess I am naive. I started Sinemet a couple of years after developing PD. Other than that a doctor had me try prameprexole (please excuse spelling). It made me into a sleep zombie so it only lasted a couple of days and I quit. Here I am with only the Sinemet.