Go Back   NeuroTalk Support Groups > >

Parkinson's Disease Tulip

Hinz Protocol - Actual Experiences

Reply
 
Thread Tools Display Modes
Old 10-20-2016, 03:30 PM   #31
Tryguy
Junior Member
 
Join Date: Oct 2016
Posts: 17
Default Hinz Protocol - Actual Experiences

Hey Billbobby, just an FYI that I could not make it more than three hours into the pill stop. The restless leg syndrome kicks in and will not let me sleep. It also will not let me stand without moving. So you see there is an issue there different from yours. Going to see what can be done if anything… Keep you posted. And thank you again!


Sent from my iPhone using Tapatalk Pro
Tryguy is offline   Reply With Quote
Old 10-20-2016, 06:01 PM   #32
billbobby21
Junior Member
 
Join Date: May 2014
Location: America
Posts: 75
Default

Quote:
Originally Posted by Tryguy View Post
Hey Billbobby, just an FYI that I could not make it more than three hours into the pill stop. The restless leg syndrome kicks in and will not let me sleep. It also will not let me stand without moving. So you see there is an issue there different from yours. Going to see what can be done if anything… Keep you posted. And thank you again!


Sent from my iPhone using Tapatalk Pro
That is unfortunate to hear. Well I hope you can get things figured out. If you start working with Dr. Kalish as you said, hopefully he will be able to sort things out for you. Anyways, if you ever have anything that you want help on or have a question that you think I could answer, just message me and I will be sure to help in anyway I can!
billbobby21 is offline   Reply With Quote
Old 10-20-2016, 07:44 PM   #33
Tryguy
Junior Member
 
Join Date: Oct 2016
Posts: 17
Default

Hey Billbobby, is there a central source for the documentation of this protocol? For example the link you sent me for the pill stop Was invaluable. I've come across quite a few of these kind of things that help me understand the protocol, but are not generally available on the surface anyway. I Find them from various site Links usually connecting to/from Dr. Stein site etc.


Sent from my iPhone using Tapatalk Pro
Tryguy is offline   Reply With Quote
Old 10-21-2016, 04:27 PM   #34
billbobby21
Junior Member
 
Join Date: May 2014
Location: America
Posts: 75
Default

Quote:
Originally Posted by Tryguy View Post
Hey Billbobby, is there a central source for the documentation of this protocol? For example the link you sent me for the pill stop Was invaluable. I've come across quite a few of these kind of things that help me understand the protocol, but are not generally available on the surface anyway. I Find them from various site Links usually connecting to/from Dr. Stein site etc.


Sent from my iPhone using Tapatalk Pro
Neurosupport.com is usually the best site and is the site owned and run by Dr. Hinz, but right now it is down for maintenance/updates it seems as stated on the website. Another good site is new.neurosciencemyths.com which is run by Dr. Stein. If that link doesn't work let me know, for some reason the link sometimes goes to a server website. The password for the password protected content is: 555. Another decent website is: Balancing Neurotransmitters for Better Health– urinary serotonin and dopamine with OCT-2 functional status interpretation. You can also go to Internet Archive Wayback Machine to look at past screenshots of the neurosupport website. In a few weeks i'm assuming the website will be back up. All their papers can be found here: Peer-reviewed papers | Management of the most far reaching and newly defined set of relative nutritional deficiencies.

Here is a good link for information on Parkinsons: Parkinson’s disease | Management of the most far reaching and newly defined set of relative nutritional deficiencies Password is 555

Last edited by billbobby21; 10-21-2016 at 06:47 PM.
billbobby21 is offline   Reply With Quote
"Thanks for this!" says:
engsec (10-29-2016), GerryW (10-25-2016), hercules957 (10-24-2016), Tryguy (11-02-2016)
Old 11-02-2016, 12:32 PM   #35
Tryguy
Junior Member
 
Join Date: Oct 2016
Posts: 17
Default

Hey BillBobby, such great info thank you so much! Those passwords be fuddled me more than I can tell you… Is there a site other than this one or health unlocked where amino acids therapy is discussed? The Hinz protocol community shouldn't be this small.


Sent from my iPhone using Tapatalk Pro
Tryguy is offline   Reply With Quote
Old 02-11-2018, 09:27 PM   #36
Marty Hinz, MD
New Member
 
Join Date: Feb 2018
Posts: 11
Shocked Hinz protocol does not include self treatment

Quote:
Originally Posted by Jon M. Pirikal View Post
This is intended to be a thread where those of us who have actual experience with the Hinz protocol, or are considering trying it, can talk among ourselves without having to defend the protocol. We can talk about good experiences and bad, discuss symptoms, provide regular status updates, offer tips and lessons learned, build up an empirical database basically.

This isn't the place to defend or criticize the Hinz protocol, in other words. If you want to debate the protocol, please post to this thread: “Hinz Protocol - Pros & Cons".

Thanks!
Jon
The Hinz protocol does not include self treatment of the brain damage results that are at the heart of Parkinson's disease. Many doctors who try and master the protocol come up short.
Marty Hinz, MD is offline   Reply With Quote
Old 11-08-2018, 08:28 AM   #37
martimoran
Newly Joined
 
Join Date: Nov 2018
Posts: 1
Smile On Amino Acid therapy 1 yr now

My husband was diagnosed a year ago with PD. We researched side effects of pharm drugs and decided not to go that route. We were blessed to find the Hinz protocol and found a clinic in WI to administer and monitor the amino acid therapy. He is on a very low dose and is doing amazing! It took a few months to find the right dosage, but now has his humor back, facial expressions, smoother movements, and more energy mentally and physically. So I definitely would say that this therapy is working for him.
martimoran is offline   Reply With Quote
Old 11-09-2018, 06:39 PM   #38
soccertese
Magnate
 
Join Date: Nov 2007
Posts: 2,482
Default

Quote:
Originally Posted by martimoran View Post
My husband was diagnosed a year ago with PD. We researched side effects of pharm drugs and decided not to go that route. We were blessed to find the Hinz protocol and found a clinic in WI to administer and monitor the amino acid therapy. He is on a very low dose and is doing amazing! It took a few months to find the right dosage, but now has his humor back, facial expressions, smoother movements, and more energy mentally and physically. So I definitely would say that this therapy is working for him.
Just curious, what is the name of the clinic you are going too, what are you taking and could you give a list of what you have been charged for and the costs and what you expect the costs will be on an annual basis. cost is just as important as the treatment.

I had similar results just taking 1 tiny carbidopa/levodopa pill 3 times a day starting 2 years after my diagnosis. just curious, did you meet anyone with parkinson's who has been on the HINZ protocol for 5 years or more? Don't know how anyone could prove how long they have been on the protocol. Posters on this board tried it and eventually stopped when it couldn't reduce their symptoms enough. I waited maybe 2 years before taking any meds after diagnosis and like you shied away from conventional drugs, just taking macuna purien capsules and also buying it in bulk plus a myriad of supplements. In year 3 i switched to conventional drugs., i didn't need to spend hundreds of dollars a month for food supplements that i had to buy from a HINZ related doctor. your're not likely going to have any side affects from a low dose HINZ protocol but you will when the dose gets high enough.

you really have no idea what is in the supplements you take in this protocol, for all you know they could grind up some carbidopa/levodopa pills and add it in to one of the common supplements they have you buy. just pure speculation on my part but why do they require you to buy all their supplements from them when they could be bought much more cheaply from a natural foods store? ever wonder why doctors are not allowed to dispense drugs except when there is no pharmacy nearby? to keep them from writing RX's just for the money. just food for thought. i think you'll find as time goes on you'll pay more and more for testing and blood work to find just the right combination of supplements and will have to take ridiculous amounts of mucana. and then will switch to C/L.


fyi
A Skeptical Look at Dr. Marty Hinz and His Views of "Neurotranmitter-Related Diseases"

Last edited by soccertese; 11-10-2018 at 02:43 AM.
soccertese is offline   Reply With Quote
"Thanks for this!" says:
eds195 (11-12-2018), made it up (11-10-2018)
Old 11-11-2018, 11:10 AM   #39
lurkingforacure
Senior Member
 
Join Date: Feb 2008
Posts: 1,464
Default any long-termers on Hinz?

I would love to hear from someone who has had PD for more than 5 years on the Hinz protocol. From what I have read, lots of things "work" very early in the disease but as things progress, it seems like everyone ends up on the conventional meds.

My question would be mainly:

1. if you are newly dx'd and start on Hinz and stick with it, did it keep you from progressing? Were you able to keep taking the same amount of product or did you need to increase/tweak it? If the protocol was really addressing the root cause, some kind of imbalance, then it would seem that you would not progress any further or develop any additional symptoms, nor would you need to increase dosages.

I guess the same thing could be said if you had had PD for several years-if the protocol re-balanced everything, your progression would stop once you achieved that balance. But I can't find anyone who ever has been able to do that on this protocol-it's a constant adjustment and testing and further adjustment, and everyone does seem to progress (or gives up and starts the PD meds) from what I can find.

I don't mean to knock this therapy-if it works for you, awesome. But the PD drugs are amazing too...in the beginning. I'd like to know how people do long-term on this protocol, other than having to resort to the meds when money runs out or it's not working as well anymore.

Please share!
lurkingforacure is offline   Reply With Quote
"Thanks for this!" says:
eds195 (11-12-2018), made it up (11-12-2018), soccertese (11-12-2018)
Reply

Tags
amino acids, hinz, l-dopa, mucuna pruriens, parkinson's disease

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Amino acid protocol Dr. Marty Hinz CTjeff Parkinson's Disease 130 05-20-2018 02:56 AM
Dr. Marty Hinz discussing his research on Amino Acids & Parkinsons (Video) billbobby21 Parkinson's Disease 26 02-11-2018 08:04 PM
Hinz Protocol - Pros & Cons Jon M. Pirikal Parkinson's Disease 0 01-06-2016 10:47 PM
New brochure about Hinz method GerryW Parkinson's Disease 0 09-09-2013 07:18 PM


All times are GMT -5. The time now is 10:12 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy