Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 01-07-2016, 01:06 AM #1
Jon M. Pirikal Jon M. Pirikal is offline
Junior Member
 
Join Date: Dec 2015
Posts: 9
8 yr Member
Jon M. Pirikal Jon M. Pirikal is offline
Junior Member
 
Join Date: Dec 2015
Posts: 9
8 yr Member
Default Hinz Protocol - Actual Experiences

This is intended to be a thread where those of us who have actual experience with the Hinz protocol, or are considering trying it, can talk among ourselves without having to defend the protocol. We can talk about good experiences and bad, discuss symptoms, provide regular status updates, offer tips and lessons learned, build up an empirical database basically.

This isn't the place to defend or criticize the Hinz protocol, in other words. If you want to debate the protocol, please post to this thread: “Hinz Protocol - Pros & Cons".

Thanks!
Jon
Jon M. Pirikal is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ASUNAGULLO (09-08-2017), badboy99 (01-07-2016), engsec (02-27-2016), SueC (01-18-2016)

advertisement
Old 03-22-2016, 03:19 AM #2
curem curem is offline
Junior Member
 
Join Date: Jan 2011
Posts: 70
10 yr Member
curem curem is offline
Junior Member
 
Join Date: Jan 2011
Posts: 70
10 yr Member
Default

I'd like to bump this thread. My father has tremor dominant Parkinson's and he has remained medication free for five years and still plays tennis, but I would like to find something that might offer some relief from the tremors. Has anyone found relief with tremors using the Hinz protocol?

Thanks!

Quote:
Originally Posted by Jon M. Pirikal View Post
This is intended to be a thread where those of us who have actual experience with the Hinz protocol, or are considering trying it, can talk among ourselves without having to defend the protocol. We can talk about good experiences and bad, discuss symptoms, provide regular status updates, offer tips and lessons learned, build up an empirical database basically.

This isn't the place to defend or criticize the Hinz protocol, in other words. If you want to debate the protocol, please post to this thread: “Hinz Protocol - Pros & Cons".

Thanks!
Jon
curem is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
TryingMyBest (03-24-2016)
Old 03-22-2016, 07:43 AM #3
GerryW's Avatar
GerryW GerryW is offline
Member
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
GerryW GerryW is offline
Member
GerryW's Avatar
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
Default

Quote:
Originally Posted by curem View Post
I'd like to bump this thread. My father has tremor dominant Parkinson's and he has remained medication free for five years and still plays tennis, but I would like to find something that might offer some relief from the tremors. Has anyone found relief with tremors using the Hinz protocol?

Thanks!
My tremors disappeared while I was on the protocol. They're back again now that I am no longer on it.
__________________
Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
GerryW is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ASUNAGULLO (09-08-2017), curem (03-23-2016), TryingMyBest (03-24-2016)
Old 03-23-2016, 05:40 AM #4
curem curem is offline
Junior Member
 
Join Date: Jan 2011
Posts: 70
10 yr Member
curem curem is offline
Junior Member
 
Join Date: Jan 2011
Posts: 70
10 yr Member
Default

Quote:
Originally Posted by GerryW View Post
My tremors disappeared while I was on the protocol. They're back again now that I am no longer on it.
Wow that's pretty amazing! How long were you on it for, and were there any side effects? Why did you stop taking it?

I have read that it can cause nausea, which is a concern for my dad, since he suffers terribly with chronic nausea.

Thanks for sharing your info!
curem is offline   Reply With QuoteReply With Quote
Old 03-23-2016, 07:52 AM #5
GerryW's Avatar
GerryW GerryW is offline
Member
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
GerryW GerryW is offline
Member
GerryW's Avatar
 
Join Date: Nov 2011
Location: Marysville, WA
Posts: 613
10 yr Member
Default

Quote:
Originally Posted by curem View Post
Wow that's pretty amazing! How long were you on it for, and were there any side effects? Why did you stop taking it?

I have read that it can cause nausea, which is a concern for my dad, since he suffers terribly with chronic nausea.

Thanks for sharing your info!
Look for the thread of 3/21/16 titled "I quit the Hinz protocol for more info. One of the benefits it confers is that it doesn't cause nausea. It is prevented by the right dose of 5-HTP. Best of luck to your dad.
__________________
Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
GerryW is offline   Reply With QuoteReply With Quote
Old 03-24-2016, 05:56 AM #6
TryingMyBest TryingMyBest is offline
Junior Member
 
Join Date: Oct 2014
Location: USA East Coast
Posts: 33
8 yr Member
TryingMyBest TryingMyBest is offline
Junior Member
 
Join Date: Oct 2014
Location: USA East Coast
Posts: 33
8 yr Member
Talking

Quote:
Originally Posted by curem View Post
I'd like to bump this thread. My father has tremor dominant Parkinson's and he has remained medication free for five years and still plays tennis, but I would like to find something that might offer some relief from the tremors. Has anyone found relief with tremors using the Hinz protocol?

Thanks!
I too have tremor dominant PD and have gone med free for 5 years. Then due to worsening tremors tried carbidopa for 4 months for no relief so I quit.... only got nauseated. Thought about the Hinz P but the idea of large amounts of the stuff to take in the beginning with only more and more to take in your future turned me off. Tried Requip (bad stuff) and Cogentin (nope) and Amantadine (ok). Now in the middle of DBS looking for tremor relief.
TryingMyBest is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
soccertese (03-24-2016)
Old 03-24-2016, 08:25 AM #7
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
Default

Quote:
Originally Posted by TryingMyBest View Post
I too have tremor dominant PD and have gone med free for 5 years. Then due to worsening tremors tried carbidopa for 4 months for no relief so I quit.... only got nauseated. Thought about the Hinz P but the idea of large amounts of the stuff to take in the beginning with only more and more to take in your future turned me off. Tried Requip (bad stuff) and Cogentin (nope) and Amantadine (ok). Now in the middle of DBS looking for tremor relief.
TRYINGYOURBEST,
just curious, i'm signed up for DBS evaluation and it looks like a very rigorous series of tests in 1 day, especially being non-medicated for 12 hours. would you mind summarizing your testing experience? it seems like besides gathering info necessary to present to an insurance company that you need DBS they also want to make sure you can withstand a day of stress that won't be nearly as bad as what the DBS operation will be like plus see what support you bring with you? Did you wonder about this, cuz it seems like they could easily schedule multiple appts for the URDS(?) unmedicated eval, depression, dementia and final neuo exam. sorry about being so nosy.
soccertese is offline   Reply With QuoteReply With Quote
Old 03-24-2016, 12:33 PM #8
TryingMyBest TryingMyBest is offline
Junior Member
 
Join Date: Oct 2014
Location: USA East Coast
Posts: 33
8 yr Member
TryingMyBest TryingMyBest is offline
Junior Member
 
Join Date: Oct 2014
Location: USA East Coast
Posts: 33
8 yr Member
Default

Quote:
Originally Posted by soccertese View Post
TRYINGYOURBEST,
just curious, i'm signed up for DBS evaluation and it looks like a very rigorous series of tests in 1 day, especially being non-medicated for 12 hours. would you mind summarizing your testing experience? it seems like besides gathering info necessary to present to an insurance company that you need DBS they also want to make sure you can withstand a day of stress that won't be nearly as bad as what the DBS operation will be like plus see what support you bring with you? Did you wonder about this, cuz it seems like they could easily schedule multiple appts for the URDS(?) unmedicated eval, depression, dementia and final neuo exam. sorry about being so nosy.
Hi,
I answered you on Blackfeather's last post thread. If you don't see it then it may have not been cleared yet.
TryingMyBest is offline   Reply With QuoteReply With Quote
Old 04-10-2016, 11:47 PM #9
SueC SueC is offline
Junior Member
 
Join Date: Aug 2015
Posts: 16
8 yr Member
SueC SueC is offline
Junior Member
 
Join Date: Aug 2015
Posts: 16
8 yr Member
Default

Quote:
Originally Posted by TryingMyBest View Post
I too have tremor dominant PD and have gone med free for 5 years. Then due to worsening tremors tried carbidopa for 4 months for no relief so I quit.... only got nauseated. Thought about the Hinz P but the idea of large amounts of the stuff to take in the beginning with only more and more to take in your future turned me off. Tried Requip (bad stuff) and Cogentin (nope) and Amantadine (ok). Now in the middle of DBS looking for tremor relief.
Hello,

I wanted to chime in on your concerns about the Hinz protocol. My sister is on it and it has been nothing short of miraculous for her. With our experience, she began on very low doses of the supplements. Over months, those amounts have been increased. She is still working with her doctor to fine-tune her dosages (which is definitely an exercise in patience!) but, once that dosage is determined, there should be no need for taking more and more in the future. (This process for her has been over the course of the last 10 months. She went from only walking for short distances, having a constant tremor along with rigidity, and needing help for all activities of daily living to walking with almost a normal gate and being independent for all activities of daily living! Her tremor is mostly gone; when it does appear, it is minor compared to what it was in the beginning.)

The protocol is expensive and does not come without challenges - but it has given my sister her quality of life back.

Wishing you well,
SueC
SueC is offline   Reply With QuoteReply With Quote
Old 04-11-2016, 12:14 AM #10
RooJr RooJr is offline
Junior Member
 
Join Date: Sep 2015
Posts: 32
8 yr Member
RooJr RooJr is offline
Junior Member
 
Join Date: Sep 2015
Posts: 32
8 yr Member
Default Hinz protocol

Can someone provide info on how to start the protocol.
Thanks
RooJr is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Drevy (10-17-2016)
Reply

Tags
amino acids, hinz, l-dopa, mucuna pruriens, parkinson's disease

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Amino acid protocol Dr. Marty Hinz CTjeff Parkinson's Disease 139 03-17-2020 08:57 PM
Dr. Marty Hinz discussing his research on Amino Acids & Parkinsons (Video) anon122822 Parkinson's Disease 26 02-11-2018 08:04 PM
Hinz Protocol - Pros & Cons Jon M. Pirikal Parkinson's Disease 0 01-06-2016 10:47 PM
New brochure about Hinz method GerryW Parkinson's Disease 0 09-09-2013 06:18 PM


All times are GMT -5. The time now is 11:39 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.