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-   -   Mannitol disolves Alpha Synuclein (https://www.neurotalk.org/parkinson-s-disease/233294-mannitol-disolves-alpha-synuclein.html)

zanpar321 03-19-2016 01:57 PM

Quote:

Originally Posted by Blackfeather (Post 1204832)
I'm sorry about your frustration with Don. Those are reasonable questions and deserved a response. I asked if syncolein could help with dystonia. He said, "I have no idea". That is all had to say. It's still worth try in my opinion

I wondered also wondered if Don was diagnosed by a doctor to have Parkinson's from his interview. If I heard him correctly, he said his brother was diagnosed with PD and Don then thought he had it also so he started trying mannitol.

japhl 04-01-2016 07:11 AM

also taking mannitol
 
Quote:

Originally Posted by zanpar321 (Post 1204364)
I'm taking the straight mannitol now at at day 8. Some extra gas but not too bad. No improvement yet but will let everyone know how it goes.

Hello, I am also taking mannitol since March 10th..did notice one thing since then and then maybe I am imagining it but at times my sense of smell has improved. I intend to stay with it for 2 months and beyond and will report back later.

grey wolf 04-26-2016 10:35 PM

Mannitol results?
 
Quote:

Originally Posted by Blackfeather (Post 1204334)
I am on day 12 and so far don't notice any difference. I am hoping I will experience something positive in the next 2 weeks. I am on board with taking syncolein until I use up my 2 month supply. I'll let everyone know my results.


Dear Blackfeather:

I would like to try taking mannitol, but have some doubts about it. Would you be so kind as to post your experience with it and how long you have taken it?
Thank you.

Grey Wolf

Blackfeather 04-27-2016 07:16 PM

I tried mannitol for 2 weeks which wasn't long enough to evaluate it fairly. I stopped taking it due to a PD related urinary tract infection which put me in the hospital for 6 days. I now have a bladder catheter which I understand will be permanent. Also under hospice care as well

zanpar321 04-28-2016 11:14 AM

Quote:

Originally Posted by Blackfeather (Post 1209480)
I tried mannitol for 2 weeks which wasn't long enough to evaluate it fairly. I stopped taking it due to a PD related urinary tract infection which put me in the hospital for 6 days. I now have a bladder catheter which I understand will be permanent. Also under hospice care as well

I guess I'm not a fruit fly. I've been taking Mannitol for six weeks and see no change in tremors. I do seem to have no constipation although that may be due to the 400 mg of magnesium every day.

grey wolf 05-15-2016 06:32 PM

any results from taking mannitol?
 
Quote:

Originally Posted by japhl (Post 1206647)
Hello, I am also taking mannitol since March 10th..did notice one thing since then and then maybe I am imagining it but at times my sense of smell has improved. I intend to stay with it for 2 months and beyond and will report back later.

Dear Japhi

Would you kindly tell us if you have seen results from taking mannitol for 2 months? What has your experience with it been like?
Very eager to hear from you, as I'm considering trying it too.

many thanks

grey wolf

japhl 05-16-2016 01:18 PM

Quote:

Originally Posted by grey wolf (Post 1211325)
Dear Japhi

Would you kindly tell us if you have seen results from taking mannitol for 2 months? What has your experience with it been like?
Very eager to hear from you, as I'm considering trying it too.

many thanks

grey wolf

Hi GreyWolf
Nothing to report as of yet, had some good days (less tremors) but not consistent. I will continue with the mannitol until my supply runs out..should be another 2 months or so. I will report back. Japhl

grey wolf 08-01-2016 06:25 PM

mannitol update
 
Quote:

Originally Posted by japhl (Post 1211399)
Hi GreyWolf
Nothing to report as of yet, had some good days (less tremors) but not consistent. I will continue with the mannitol until my supply runs out..should be another 2 months or so. I will report back. Japhl

Dear Japhi

How is it going with the mannitol experiment? Would love to hear an update. Also do you know whether Don claims to know others who had success with mannitol?

many thanks,

GreyWolf

japhl 08-02-2016 08:17 AM

Quote:

Originally Posted by grey wolf (Post 1219070)
Dear Japhi

How is it going with the mannitol experiment? Would love to hear an update. Also do you know whether Don claims to know others who had success with mannitol?

many thanks,

GreyWolf

Hi GreyWolf,
Just finished my supply..did not notice any positive results.
Japhl

zanpar321 08-02-2016 09:37 PM

Quote:

Originally Posted by japhl (Post 1219147)
Hi GreyWolf,
Just finished my supply..did not notice any positive results.
Japhl

Mannitol didn't do anything for me either


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