Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 03-19-2016, 01:57 PM #11
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
Default

Quote:
Originally Posted by Blackfeather View Post
I'm sorry about your frustration with Don. Those are reasonable questions and deserved a response. I asked if syncolein could help with dystonia. He said, "I have no idea". That is all had to say. It's still worth try in my opinion
I wondered also wondered if Don was diagnosed by a doctor to have Parkinson's from his interview. If I heard him correctly, he said his brother was diagnosed with PD and Don then thought he had it also so he started trying mannitol.
zanpar321 is offline   Reply With QuoteReply With Quote

advertisement
Old 04-01-2016, 07:11 AM #12
japhl japhl is offline
Junior Member
 
Join Date: Apr 2016
Location: Maple Shade NJ
Posts: 7
8 yr Member
japhl japhl is offline
Junior Member
 
Join Date: Apr 2016
Location: Maple Shade NJ
Posts: 7
8 yr Member
Default also taking mannitol

Quote:
Originally Posted by zanpar321 View Post
I'm taking the straight mannitol now at at day 8. Some extra gas but not too bad. No improvement yet but will let everyone know how it goes.
Hello, I am also taking mannitol since March 10th..did notice one thing since then and then maybe I am imagining it but at times my sense of smell has improved. I intend to stay with it for 2 months and beyond and will report back later.
japhl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GerryW (04-01-2016), moondaughter (04-02-2016), rd42 (02-02-2020)
Old 04-26-2016, 10:35 PM #13
grey wolf grey wolf is offline
New Member
 
Join Date: Apr 2016
Posts: 4
8 yr Member
grey wolf grey wolf is offline
New Member
 
Join Date: Apr 2016
Posts: 4
8 yr Member
Default Mannitol results?

Quote:
Originally Posted by Blackfeather View Post
I am on day 12 and so far don't notice any difference. I am hoping I will experience something positive in the next 2 weeks. I am on board with taking syncolein until I use up my 2 month supply. I'll let everyone know my results.

Dear Blackfeather:

I would like to try taking mannitol, but have some doubts about it. Would you be so kind as to post your experience with it and how long you have taken it?
Thank you.

Grey Wolf
grey wolf is offline   Reply With QuoteReply With Quote
Old 04-27-2016, 07:16 PM #14
Blackfeather Blackfeather is offline
Member
 
Join Date: Jun 2014
Posts: 175
10 yr Member
Blackfeather Blackfeather is offline
Member
 
Join Date: Jun 2014
Posts: 175
10 yr Member
Default

I tried mannitol for 2 weeks which wasn't long enough to evaluate it fairly. I stopped taking it due to a PD related urinary tract infection which put me in the hospital for 6 days. I now have a bladder catheter which I understand will be permanent. Also under hospice care as well
Blackfeather is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
moondaughter (04-28-2016)
Old 04-28-2016, 11:14 AM #15
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
Default

Quote:
Originally Posted by Blackfeather View Post
I tried mannitol for 2 weeks which wasn't long enough to evaluate it fairly. I stopped taking it due to a PD related urinary tract infection which put me in the hospital for 6 days. I now have a bladder catheter which I understand will be permanent. Also under hospice care as well
I guess I'm not a fruit fly. I've been taking Mannitol for six weeks and see no change in tremors. I do seem to have no constipation although that may be due to the 400 mg of magnesium every day.
zanpar321 is offline   Reply With QuoteReply With Quote
Old 05-15-2016, 06:32 PM #16
grey wolf grey wolf is offline
New Member
 
Join Date: Apr 2016
Posts: 4
8 yr Member
grey wolf grey wolf is offline
New Member
 
Join Date: Apr 2016
Posts: 4
8 yr Member
Default any results from taking mannitol?

Quote:
Originally Posted by japhl View Post
Hello, I am also taking mannitol since March 10th..did notice one thing since then and then maybe I am imagining it but at times my sense of smell has improved. I intend to stay with it for 2 months and beyond and will report back later.
Dear Japhi

Would you kindly tell us if you have seen results from taking mannitol for 2 months? What has your experience with it been like?
Very eager to hear from you, as I'm considering trying it too.

many thanks

grey wolf
grey wolf is offline   Reply With QuoteReply With Quote
Old 05-16-2016, 01:18 PM #17
japhl japhl is offline
Junior Member
 
Join Date: Apr 2016
Location: Maple Shade NJ
Posts: 7
8 yr Member
japhl japhl is offline
Junior Member
 
Join Date: Apr 2016
Location: Maple Shade NJ
Posts: 7
8 yr Member
Default

Quote:
Originally Posted by grey wolf View Post
Dear Japhi

Would you kindly tell us if you have seen results from taking mannitol for 2 months? What has your experience with it been like?
Very eager to hear from you, as I'm considering trying it too.

many thanks

grey wolf
Hi GreyWolf
Nothing to report as of yet, had some good days (less tremors) but not consistent. I will continue with the mannitol until my supply runs out..should be another 2 months or so. I will report back. Japhl
japhl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
grey wolf (05-16-2016)
Old 08-01-2016, 06:25 PM #18
grey wolf grey wolf is offline
New Member
 
Join Date: Apr 2016
Posts: 4
8 yr Member
grey wolf grey wolf is offline
New Member
 
Join Date: Apr 2016
Posts: 4
8 yr Member
Default mannitol update

Quote:
Originally Posted by japhl View Post
Hi GreyWolf
Nothing to report as of yet, had some good days (less tremors) but not consistent. I will continue with the mannitol until my supply runs out..should be another 2 months or so. I will report back. Japhl
Dear Japhi

How is it going with the mannitol experiment? Would love to hear an update. Also do you know whether Don claims to know others who had success with mannitol?

many thanks,

GreyWolf
grey wolf is offline   Reply With QuoteReply With Quote
Old 08-02-2016, 08:17 AM #19
japhl japhl is offline
Junior Member
 
Join Date: Apr 2016
Location: Maple Shade NJ
Posts: 7
8 yr Member
japhl japhl is offline
Junior Member
 
Join Date: Apr 2016
Location: Maple Shade NJ
Posts: 7
8 yr Member
Default

Quote:
Originally Posted by grey wolf View Post
Dear Japhi

How is it going with the mannitol experiment? Would love to hear an update. Also do you know whether Don claims to know others who had success with mannitol?

many thanks,

GreyWolf
Hi GreyWolf,
Just finished my supply..did not notice any positive results.
Japhl
japhl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anagirl (08-02-2016)
Old 08-02-2016, 09:37 PM #20
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
Default

Quote:
Originally Posted by japhl View Post
Hi GreyWolf,
Just finished my supply..did not notice any positive results.
Japhl
Mannitol didn't do anything for me either
zanpar321 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Can Alpha Synuclein be seen using a microscope? zanpar321 Parkinson's Disease 13 05-20-2015 11:17 AM
Too much or too little alpha-synuclein VICTORIALOU Parkinson's Disease 0 03-20-2013 06:50 PM
Alpha-synuclein Diego24 Parkinson's Disease 6 07-14-2012 11:59 PM
Alpha synuclein paula_w Parkinson's Disease 7 08-15-2011 02:57 PM
Alpha synuclein news lurkingforacure Parkinson's Disease 0 11-05-2008 05:08 PM


All times are GMT -5. The time now is 06:29 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.