Parkinson's Disease Tulip


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Old 03-19-2016, 01:57 PM #11
zanpar321 zanpar321 is offline
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Originally Posted by Blackfeather View Post
I'm sorry about your frustration with Don. Those are reasonable questions and deserved a response. I asked if syncolein could help with dystonia. He said, "I have no idea". That is all had to say. It's still worth try in my opinion
I wondered also wondered if Don was diagnosed by a doctor to have Parkinson's from his interview. If I heard him correctly, he said his brother was diagnosed with PD and Don then thought he had it also so he started trying mannitol.
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Old 04-01-2016, 07:11 AM #12
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I'm taking the straight mannitol now at at day 8. Some extra gas but not too bad. No improvement yet but will let everyone know how it goes.
Hello, I am also taking mannitol since March 10th..did notice one thing since then and then maybe I am imagining it but at times my sense of smell has improved. I intend to stay with it for 2 months and beyond and will report back later.
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GerryW (04-01-2016), moondaughter (04-02-2016), rd42 (02-02-2020)
Old 04-26-2016, 10:35 PM #13
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Default Mannitol results?

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I am on day 12 and so far don't notice any difference. I am hoping I will experience something positive in the next 2 weeks. I am on board with taking syncolein until I use up my 2 month supply. I'll let everyone know my results.

Dear Blackfeather:

I would like to try taking mannitol, but have some doubts about it. Would you be so kind as to post your experience with it and how long you have taken it?
Thank you.

Grey Wolf
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Old 04-27-2016, 07:16 PM #14
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I tried mannitol for 2 weeks which wasn't long enough to evaluate it fairly. I stopped taking it due to a PD related urinary tract infection which put me in the hospital for 6 days. I now have a bladder catheter which I understand will be permanent. Also under hospice care as well
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Old 04-28-2016, 11:14 AM #15
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I tried mannitol for 2 weeks which wasn't long enough to evaluate it fairly. I stopped taking it due to a PD related urinary tract infection which put me in the hospital for 6 days. I now have a bladder catheter which I understand will be permanent. Also under hospice care as well
I guess I'm not a fruit fly. I've been taking Mannitol for six weeks and see no change in tremors. I do seem to have no constipation although that may be due to the 400 mg of magnesium every day.
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Old 05-15-2016, 06:32 PM #16
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Default any results from taking mannitol?

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Hello, I am also taking mannitol since March 10th..did notice one thing since then and then maybe I am imagining it but at times my sense of smell has improved. I intend to stay with it for 2 months and beyond and will report back later.
Dear Japhi

Would you kindly tell us if you have seen results from taking mannitol for 2 months? What has your experience with it been like?
Very eager to hear from you, as I'm considering trying it too.

many thanks

grey wolf
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Old 05-16-2016, 01:18 PM #17
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Dear Japhi

Would you kindly tell us if you have seen results from taking mannitol for 2 months? What has your experience with it been like?
Very eager to hear from you, as I'm considering trying it too.

many thanks

grey wolf
Hi GreyWolf
Nothing to report as of yet, had some good days (less tremors) but not consistent. I will continue with the mannitol until my supply runs out..should be another 2 months or so. I will report back. Japhl
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Old 08-01-2016, 06:25 PM #18
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Default mannitol update

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Hi GreyWolf
Nothing to report as of yet, had some good days (less tremors) but not consistent. I will continue with the mannitol until my supply runs out..should be another 2 months or so. I will report back. Japhl
Dear Japhi

How is it going with the mannitol experiment? Would love to hear an update. Also do you know whether Don claims to know others who had success with mannitol?

many thanks,

GreyWolf
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Old 08-02-2016, 08:17 AM #19
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Dear Japhi

How is it going with the mannitol experiment? Would love to hear an update. Also do you know whether Don claims to know others who had success with mannitol?

many thanks,

GreyWolf
Hi GreyWolf,
Just finished my supply..did not notice any positive results.
Japhl
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Old 08-02-2016, 09:37 PM #20
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Hi GreyWolf,
Just finished my supply..did not notice any positive results.
Japhl
Mannitol didn't do anything for me either
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