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04-07-2016, 08:09 AM | #11 | |||
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Senior Member
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Yes..If this continues, they will die like a battery in an old chevy thats been sitting for a long time..LOL
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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"Thanks for this!" says: | TryingMyBest (04-14-2016) |
04-07-2016, 10:56 AM | #12 | ||
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Junior Member
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Does anyone have experience with DBS surgery done while
being unconscious vs. the conscious approach (which I presume is how these recent postings were done)? I'm told the 'conscious' surgery is significantly more effective than the alternative. |
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04-07-2016, 01:51 PM | #13 | |||
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Senior Member
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My fiance has Post-encephalitic Parkinsonism..She has had two DBS surgeries..One in 2003, that was removed in 2012 because of a lead that was put in the wrong place..She had a second one in 2013 for severe dyskinesia, and dystonia..The surgery was a success, however she gets a tad of dyskinesia now and then lately..She has very narrow blood vessels, and the only place they could find a place to stick the picc line in, was in her foot..So she wasn't comfortable with that , so she asked them to knock her out..I couldn't tell you if her surgery would have been more successful if she was awake, but I can tell you from my experience, that communication with the DBS team during surgery is vital in my opinion..Her first DBS was in the STN, and her 2nd surgery was in the GPI area of the brain
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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04-07-2016, 02:39 PM | #14 | |||
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Member
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Quote:
https://www.youtube.com/watch?v=i47FViy8dJg
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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04-07-2016, 04:14 PM | #15 | ||
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Thanks Gerry...very informative video, worth watching.....
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04-08-2016, 01:15 PM | #16 | ||
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Junior Member
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Quote:
You want the most effective method. This is not the time to play it safe. It is too important. Choose the awake surgery. Then again it is a personal choice. Better asleep surgery than not at all. Last edited by TryingMyBest; 04-08-2016 at 08:35 PM. |
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04-14-2016, 07:08 AM | #17 | ||
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Junior Member
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Quote:
Apathy is having no interest in doing anything. Very much a new lease on life! Planning to travel again. Lined up some trips. 2nd programming took 10 min and he improved my tremors. Dr said there are literally thousands of combinations to do so he will get there 100%. I'm at 98%. Can't complain. I know someone that has DBS almost 15 yrs now and still doing well! |
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04-14-2016, 08:22 AM | #18 | ||
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Junior Member
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My last visit with my Neuro he said it is time to start considering DBS. I never gave any thought about having this operation and the words hit me hard. My original thoughts were no way. I hadn't read any real positives from people that had the operation and did read there were mobility benefits but cognitive detriments. I did not want to go on as a Zombie. I have always been an optimist and lately your term "apathy" is applicable to me. That you have had success is a motivator and I am going to get a second opinion about having the operation in 2 weeks. Should I consider having the operation at the Mayo Clinic?
Thanks again for your post. |
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"Thanks for this!" says: | TryingMyBest (04-16-2016) |
04-16-2016, 06:53 AM | #19 | ||
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Junior Member
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Quote:
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04-18-2016, 04:31 PM | #20 | |||
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Senior Member
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I have been a fisherman for 40 years..Yesterday was my first day out since August 2014..This is what DBS did for me
I am on the left, and my good friend Kevin is on the right
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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