http://www.parkinsonpost.com/2016/03/

this may of be some help or information for you and others I hope

Hi Thelma!!..It is wonderful that you are still posting..How are you?..And yes, that article was great..It addresses something that I have suspected years ago..I have a tough time with freezing, and I have alot of anxiety..I came to the conclusion that freezing and anxiety are connected..When I find a Dr who will get me on the right anxiety medication, I believe, that the freezing will be history..I think lots of pd symptoms, for some PWP can be treated with a, fill in the blanks______________ medication, therapy, surgery etc..While I am going through a freezing episode, I will come to the largest opening in the house..The living room, which measures 4' feet wide, and 7' feet high, and every morning after a struggle making a cup of coffee, to wash my meds down, I reach this opening, that you could drive a compact car through, and I have this thought that pops into my head.."How am I going to make it through there?"..It is not the fear of losing my balance and falling down, cuz I don't fall down when I'm off..I fall down when Im on..Those are the two things that did not improve with DBS..They did improve for about 4 weeks, but they came back, and it is the stone in my shoe that dyskinesia was..Dyskinesia is gone, and it has been 4 months since the surgery, that the batteries have been off..A miracle?..Luck?..Another medical break through?..I think not..I think it has a lot more to do with my attitude..I have more stuff that has to be done when I get home, therefore I can't be bugging people for a ride to Boston every two or three weeks for a programming session..One of the people I asked got in a bad accident on Rt 93 on the way home..We got rear ended, and there was almost $8000 worth of damage on her car, and she was not happy about it..One friend of mine gave me a few rides up there, and his driving scared me more than the DBS surgery did..My neurosurgeon and my MDS want me to come in for an MRI in June to look at the placement of the wires, to try to solve the mystery of this phenomenon

I know this phenomenon exists..At my Dec appointment, my MDS/programmer tried a few adjustments, to get to better understand my condition..Before I left that day, he said that he wanted to try 3 more settings before I go home..He said..Ok it's on..I would have sworn that I felt the electricity in my brain..Tell me how you feel..Ok, how do you feel?..I told him I feel a weakness just above and below my right leg..He said ok, I am going to go one step higher..He said Im going to tell you when I am ready..Ok, how does that feel?..I had the worst dyskinesia I have ever had in my life..Ok, I going back down to your base line, and the dyskinesia stopped..Then he said he was gonna go one notch higher..Ok, here we go..How is that setting..My legs had this overwhelming sense of weakness..I stood up, and could not move one step..Then the Dr told me that he turned the DBS off..How do you feel now..I said that I felt relaxed, good..Then he said, there is something I have to tell you..The programming device was off the whole time..He didn't activate the batteries, so I reacted to nothing 3 times..My Dr told me that he does that to some of his patients to get a feel of what they are thinking..So I asked him, "What am I thinking"..His answer was, You want all the benefits of the DBS without turning it on, and I said that's right

That blew my mind..I am still trying to digest that

BTW..Harley and I got engaged 18 months ago

Congratulations! Harley(Laura) and Steve...