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06-03-2016, 08:41 PM | #1 | |||
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Hi everyone!!..Today was my day to go to Boston for an MRI, to find out why the leads in my brain are treating my symptoms with the stimulator batteries off for 8 months..And I continue to feel better as time goes on..My balance took a turn for the worse a couple of months ago..I was falling all over the place..I would get up out of a chair and in two steps find myself on the floor, or I would start walking and and end up running from one end of the house into the bathrom and crashing into the wall to stop running out of control..On Monday that changed, and I seem to be recovering from from my balance problem
When I got down to radiology, one of the technicians read my paper work, and she asked me about the wires in my brain and the batteries inplanted in my chest, and asked me if neurology knew about it, and I said yes they do..They told me they had a special MRI machine for DBS hardware..And she said, "No we dont"..We talked for a few minutes, and I explained that I was not there for the MRI because there was something wrong with me..I was there because the DBS surgery team who performed my surgery are anxious to find out why my DBS has been shut off for 8 months, my wild dyskinsia is gone, and my mild dyskinesia after the surgery is also for the most part is also gone She had some paperwork for me to sign stating that I was aware of the risks etc..I sat and thought about it for a while, and I asked her if she would have the Radiologist come out and talk to me..He came out and I expressed my concerns about having the MRI done..I asked what the risks were?..And he told me that most people have no problems with it, but he said we have had some minor problems..We have had some minor wire singes etc..So I sat and though about it some more..In one month from today I am going to be 63 years old..I have had pd for 14 years..I have suffered enough, and if this miracle could happen to me, then so could a disaster happen during the MRI..If that MRI singed or moved one of my leads an iota of an inch, I could be back to square one..I decide that I had nothing to gain, and everything to lose, if I had the MRI..Right now I am on a winning streak that the Drs told me would never happen, but it did, and the healing is continuing to materialize against all odds..I do not question the expertise of Dr Fox, and Dr Alterman..Whatever they did during that surgery, they made me like this..And the question that has left everyone baffled and curious, including myself is, how did this happen?..I told them that I wouldn't sign the paper..I said that if I had to sign a waver, stating that I was aware of the risks, then there must be risks, or why else would they be asking me to protect them if I end up a basket case..Well, I have found my purpose in life, and I continue to fulfill it, and I am at peace with my decision
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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"Thanks for this!" says: | Bergamotte (06-04-2016), eds195 (06-04-2016), jeffreyn (06-04-2016), johnt (06-04-2016), lab rat (06-04-2016), RLSmi (06-04-2016), shcg (06-05-2016), TryingMyBest (06-10-2016) |
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