Parkinson's Disease Tulip


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Old 06-15-2016, 04:28 PM #1
soccertese soccertese is offline
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Join Date: Nov 2007
Posts: 2,531
15 yr Member
soccertese soccertese is offline
Magnate
 
Join Date: Nov 2007
Posts: 2,531
15 yr Member
Default i'll be getting DBS if insurance approves and i pass a physical

just having to take meds too often and diminishing affect. passed the dbs mental and physical tests. was a little hesitant to do this since i don't have a long term care giver if anything goes wrong but i figured i'm going to get worse, do it now while i'm in good health and have the support i'll need for recovery, i'll have to face this dilemma by just getting older and not just for pd. i'm 62 and i don't see anything better on the horizon for at least the next 5 years so no point in worrying about a DBS preventing me from getting into a clinical trial.

i was diagnosed 14 years ago and my medicated UPDRS part 3 score was 9, unmedicated 28, I think 25 is the cuttoff. What this test fails to measure is mental fatigue which is a major symptom i have, rigidity the other. i hope i can reduce my l-dopa significantly and that will help the fatigue.
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