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06-29-2016, 10:37 AM | #1 | ||
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proudest_mama,
You ask: "Am I not being realistic to hope that I'll have another good 11 years?" I think you are - provided that something else doesn't get you first. It is likely that an up to now slow progression is a good indicator of a slow rate of progression in the future. I was diagnosed at 49 and I'm now 11 years post diagnosis. My drug regimen for the last 7 years has roughly been: - rasagiline, 1mg; - ropinirole, 16mg; - Stalevo, 4 x 75mg. I say "roughly" because, although I take the rasagiline and ropinirole consistently (in the morning), I take my Stalevo on an "as needed" basis: if I'm on a good "on" or don't need to perform, I delay taking the next dose; if a dose has been lost, perhaps because of food interactions, I take the next dose early. (Note: many doctors will argue that a strict timetable should be adhered to. I think, at least in my case, they are wrong.) Apart from a few outliers, this has led to me taking either 3, 4 or 5 75mg Stalevo tablets per day. At the start of this 7 year period it was 3 sometimes 4 per day, now it is 4 sometimes 3 or 5 day. During this time my motor symptoms have remained fairly constant. However, my non-motor symptoms (e.g. constipation, posture, drooling etc.) have got worse. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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