Parkinson's Disease Tulip


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Old 07-18-2007, 11:19 AM #10
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
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paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default Have scientists prove it

The only placebo control I ever "heard" about DBS (not verified) was in Europe somewhere they "pretended" to turn on the stimulator. Don't quote me.

That is one of the biggest points about sham surgery - the one successful surgery we have requires "patient observation" - not just statistics.

Many of us would like to know exactly how much time would be saved or lost, to just give the treatment to everyone and then observe who it works for.

Scientists should have the burden of proof that the placebo effect can last as long as they claim it can. They claimed years with GDNF.

Paula
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"Time is not neutral for those who have pd or for those who will get it."
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