NeuroTalk Support Groups

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Parkinson's Disease (https://www.neurotalk.org/parkinson-s-disease/)

- - DBS today (https://www.neurotalk.org/parkinson-s-disease/240776-dbs.html)

sim00

10-12-2016 08:50 AM

Quote:

Originally Posted by pegleg (Post 1226063)

Hi all
Yes, I was a doubting Thomas, also. But this November, it will be one year since I decided to have DBS. We all have the operation with different expectations - mine were to take control over my horribllle dyskinetic body. And today, I am so much improved. No longer do I twist and wryth every joint, but I can sit so quietly without of that type stuff anymore.

I just kept putting it off, thinking, "well, if I've made it this far . . .!"
Why did I takke so long?? Please start asking questions to see DBS is an option for improving your quality of life. It was worth it!

Peggy

Very glad to hear your improvement, Peggy.

bluesking

10-12-2016 10:19 AM

I really don't know how to put this into words. I had the procedure done this Monday, and so far, the results have been difficult to track as far as far as the symptoms that have changed. Currently the shuffling of feet is a shadow of what is was, and the on/off transisition is gone!!!!

All I can add is, please. please, consider having this done. It is absolutely life changing.

David

sim00

10-12-2016 12:21 PM

Quote:

Originally Posted by bluesking (Post 1226228)

Hi David,
consider*that the best results*are obtained after*at least one*month after surgery*and at*the neurostimulator*must*be adjusted*finely*and our*body has to adapt,*and this*is totally subjective.*The full path*requires*nearly 1*year for*the finaladjustment.

zanpar321

10-12-2016 04:08 PM

Quote:

Originally Posted by bluesking (Post 1226228)

So glad you had the DBS done David. I'm guessing you don't even have the system turned on yet. I'm still fine tuning the system at 6+ weeks after the surgery. So glad it helped and will likely get better over time!

bluesking

10-12-2016 04:53 PM

True, it isn't even turned on yet, but there are definitely changes. We'll give it some time to analyze further. All I know is that I was very hesitant to go through with DBS, and now I can't imagine not.

sim00

12-02-2016 03:57 PM

Dear friends, after about 4 months after DBS surgery, I feel very well, because I do not take any more medicine. I do not feel constantly tired, and to all of you my dear friends, fellow sufferers, I strongly suggest, does not arrive to the point of almost no return. Who can make dbs surgery, do it quietly. do not worry. the drugs also kill more quickly.:eek:

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