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10-07-2016, 04:07 PM | #1 | |||
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Dear friends, it's been a bit of time since I have posted on this forum, but there is a reason, and that reason is called DBS. Yes, dear friends, I have had to make a choice, now no longer be postponed, and I absolutely do not regret to have done, in case, I repent today, not to have made this choice a little earlier.
In fact, I was at the point of taking up to almost 1 g of levodopa per day, with very little results, but today with DBS, I take 50mg a day, and only because the neurologist has advised me not to suspend it completely. Certainly surgery is not for everyone, unfortunately, but for those found to be candidates, I say (and remark) I am not a doctor, I say do it, because although it is not a small thing, after doing this, you reborn. guaranteed ...
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Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
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"Thanks for this!" says: | anagirl (10-08-2016), badboy99 (10-08-2016), billybiffboffo (10-07-2016), GerryW (10-09-2016), soccertese (10-08-2016) |
10-07-2016, 04:27 PM | #2 | ||
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Last edited by zanpar321; 10-07-2016 at 06:17 PM. |
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10-07-2016, 04:37 PM | #3 | |||
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Zanpar321 Thanks for your answer, it seems almost a miracle, after about 11 years of illness, get back to doing the things that I did when I was not even sick.
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Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
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"Thanks for this!" says: | zanpar321 (10-07-2016) |
10-07-2016, 05:00 PM | #4 | ||
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Great news.....glad to hear it went well and you have your life back....I get the feeling that the surgery teams are improving in DBS with each procedure they do....good news for all of us PD'ers that might follow you up the road...enjoy the new freedom and life.....best....
Eric |
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10-07-2016, 06:10 PM | #5 | ||
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Real-time adaptive brain control: Combining a BCI with DBS to treat Parkinson’s | ExtremeTech |
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"Thanks for this!" says: | billybiffboffo (10-07-2016), eds195 (10-08-2016), ScottSuff (12-03-2016), sim00 (10-08-2016), soccertese (10-08-2016) |
10-08-2016, 03:04 PM | #6 | |||
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Immediately*after surgery,*I*participated in a*clinical trial*on a new*device called*"adaptive*neurostimulator",*which provided the*stimulation*only when needed,*and in my*feeling,it gave me*more comfort*than*fixed*delivery*(*MedtronicActiva*PC)* already excellent, that implanted to me.
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Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
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10-10-2016, 03:26 PM | #7 | |||
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Hi all
Yes, I was a doubting Thomas, also. But this November, it will be one year since I decided to have DBS. We all have the operation with different expectations - mine were to take control over my horribllle dyskinetic body. And today, I am so much improved. No longer do I twist and wryth every joint, but I can sit so quietly without of that type stuff anymore. I just kept putting it off, thinking, "well, if I've made it this far . . .!" Why did I takke so long?? Please start asking questions to see DBS is an option for improving your quality of life. It was worth it! Peggy |
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10-10-2016, 05:46 PM | #8 | |||
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Prayer for YOU today, sim00.
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"Beer is proof positive that God loves us and wants us to be happy"...Ben Franklin. These forums are for mutual support and the sharing information only. The forums are not a substitute for medical advice, diagnosis, or treatment provided by qualified health care professionals. Always consult your doctor before trying anything you read about here. |
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"Thanks for this!" says: | sim00 (10-12-2016) |
10-10-2016, 09:14 PM | #9 | ||
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"Thanks for this!" says: | sim00 (10-12-2016) |
10-12-2016, 08:46 AM | #10 | |||
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Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
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