Parkinson's Disease Tulip


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Old 10-07-2016, 04:07 PM #1
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Thumbs up DBS today

Dear friends, it's been a bit of time since I have posted on this forum, but there is a reason, and that reason is called DBS. Yes, dear friends, I have had to make a choice, now no longer be postponed, and I absolutely do not regret to have done, in case, I repent today, not to have made this choice a little earlier.
In fact, I was at the point of taking up to almost 1 g of levodopa per day, with very little results, but today with DBS, I take 50mg a day, and only because the neurologist has advised me not to suspend it completely.
Certainly surgery is not for everyone, unfortunately, but for those found to be candidates, I say (and remark) I am not a doctor, I say do it, because although it is not a small thing, after doing this, you reborn. guaranteed ...
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Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016.
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Old 10-07-2016, 04:27 PM #2
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Originally Posted by sim00 View Post
Dear friends, it's been a bit of time since I have posted on this forum, but there is a reason, and that reason is called DBS. Yes, dear friends, I have had to make a choice, now no longer be postponed, and I absolutely do not regret to have done, in case, I repent today, not to have made this choice a little earlier.
In fact, I was at the point of taking up to almost 1 g of levodopa per day, with very little results, but today with DBS, I take 50mg a day, and only because the neurologist has advised me not to suspend it completely.
Certainly surgery is not for everyone, unfortunately, but for those found to be candidates, I say (and remark) I am not a doctor, I say do it, because although it is not a small thing, after doing this, you reborn. guaranteed ...
That's great! I also had dbs after waiting 6 years. I had the surgery done a month ago. Guess I'm a Cyborg now LOL! What a relief it has been! I'm about 90% better! Yesterday I forgot I had Parkinson's! Still hoping for a cure but this should help me get there.

Last edited by zanpar321; 10-07-2016 at 06:17 PM.
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Old 10-07-2016, 04:37 PM #3
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Zanpar321 Thanks for your answer, it seems almost a miracle, after about 11 years of illness, get back to doing the things that I did when I was not even sick.
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Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016.
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Old 10-07-2016, 05:00 PM #4
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Great news.....glad to hear it went well and you have your life back....I get the feeling that the surgery teams are improving in DBS with each procedure they do....good news for all of us PD'ers that might follow you up the road...enjoy the new freedom and life.....best....

Eric
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Old 10-07-2016, 06:10 PM #5
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Great news.....glad to hear it went well and you have your life back....I get the feeling that the surgery teams are improving in DBS with each procedure they do....good news for all of us PD'ers that might follow you up the road...enjoy the new freedom and life.....best....

Eric
Looking forward to the DBS systems now being tested that will react real time to turn the DBS on/off and adjust based on feedback from the brain. Maybe a couple of years away!

Real-time adaptive brain control: Combining a BCI with DBS to treat Parkinson’s | ExtremeTech
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Old 10-08-2016, 03:04 PM #6
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Originally Posted by zanpar321 View Post
Looking forward to the DBS systems now being tested that will react real time to turn the DBS on/off and adjust based on feedback from the brain. Maybe a couple of years away!

Real-time adaptive brain control: Combining a BCI with DBS to treat Parkinson’s | ExtremeTech

Immediately*after surgery,*I*participated in a*clinical trial*on a new*device called*"adaptive*neurostimulator",*which provided the*stimulation*only when needed,*and in my*feeling,it gave me*more comfort*than*fixed*delivery*(*MedtronicActiva*PC)* already excellent, that implanted to me.
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