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12-04-2016, 10:51 AM | #11 | ||
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Junior Member
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I'm having trouble getting my arms around this, I really am. First of all,
no one on the planet has any more respect for MJFF than I do, or least I used to have. And I'm sure everything I've read about this pi**ing match between GU and MJFF isn't guaranteed to be 100% accurate, and yes I'm very much aware that there are some incredibly talented people at MJFF, BUT I feel a slow rage that I'm not sure that I've experienced ever in my life. and of course, that is the last thing that anyone needs with tremor (yes, some level of tremor even after DBS). To MJFF and the like, DO NOT take the American populace and various philanthropy organizations for granted. And I don't want to see headlines on your web sites bragging about all your wonderful research that may or may not position us to apply for a trial in 5 years as I struggle to shave, shower, urinate, dress, speak, and pray that my spouse doesn't give up on me. I've had enough. Either reposition your business model to do a much, much better job at producing tangible results next year (meaning products with actual benefit IN the pipeline), exhausting ALL resources in this incredible country, or do us all a favor and join the hot dog vendors in front of your posh offices and be content to make less than 10K a year. |
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"Thanks for this!" says: | eds195 (12-04-2016), made it up (12-04-2016) |
12-04-2016, 04:02 PM | #12 | ||
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Member
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Just found this on Veritas. Know nothing about PRX002.
First-in-human assessment of PRX 2, an anti-α-synuclein monoclonal antibody, in healthy volunteers. - PubMed - NCBI |
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12-04-2016, 04:05 PM | #13 | ||
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Just found this on ******* (correction). Know nothing about PRX002.
First-in-human assessment of PRX 2, an anti-α-synuclein monoclonal antibody, in healthy volunteers. - PubMed - NCBI |
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12-04-2016, 04:07 PM | #14 | ||
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12-04-2016, 04:25 PM | #15 | ||
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Quote:
Last edited by Tupelo3; 12-04-2016 at 06:00 PM. |
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12-05-2016, 08:10 AM | #16 | ||
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Junior Member
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Not sure if this was posted before, but this was a good story about how the MJFF mishandled this with GU:
Parkinson's disease study caught in feud involving Fox Foundation And a response from the MJFF CEO on this matter: Fox Foundation committed to moving rapidly and carefully on Parkinson’s drug trial - The Boston Globe |
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12-05-2016, 10:33 AM | #17 | ||
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Quote:
Last edited by Tupelo3; 12-05-2016 at 11:06 AM. |
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