Hello,

Found this on the Net while looking for information on nocturnal dystonia... It's from 2001 but I find it interresting.

Greetings
Karine

[SYMPOSIUM]

Pain in Parkinson's disease

Common yet seldom recognized symptom is treatable

Shamaila Waseem, MD; Katrina Gwinn-Hardy, MD

VOL 110 / NO 6 / DECEMBER 2001 / POSTGRADUATE MEDICINE
http://www.postgradmed.com/issues/2001/12_01/waseem.htm

THANK YOU!
Dear Karine,
I live in a small mid -western area -the town has 3 neurologist, that is all!
One is in the same practice with my neuro, so I am not able to go to him -rules you know?
The other took me off all my PD meds in 2001 telling me, I was too young for PD that I had Multiple Sclerosis, she took me off my benzodiazepine and Sinemet
I had to go to the ER 3 days later, because of the painful horrid withdrawl -
I was blessed with an ER doctor from Houston Texas, who called her an idiot.
He ordered a shot of valium for me, and told me - never let anyone do this to me again, benzodiazepines must be titrated down...or death can follow,
So it is a hard fact - that not all doctors are good at their profession.
after I had been dxd by a famous neurosurgeon and several doctors at Bethesda, as having PD.
Making a film in 2000 - had not done much good, if no one hears the truth.
Besides pain many Young Onset do not get a good diagnosis, still!

this is still a vital concern of mine! the info ios out there, the learned men and women called, Medical Doctors won't get updated

Thanks for the excellent article...in spite of being a little dated, it describes it very well.

paula

Thanks for the article, Karine!

Victims? CP is a great big unanswered question. Rarely brought to the surface where we talk about it, I think because of an ancient taboo in our society that when one suffers pain, they should just shut-up and take it.
Well, I didn't let that happen to me. If relief comes in a pill, I'm taking it, no matter what the side effects are. When you get to the point where CP and PD interupts your life completely, you NEED something to dull the living hell that constant pain and stifness can be. Thank God we still have access to opiates. Not all doctors are willing to stick their necks out for us CP-PDer's (there are a lot of people who fake pain to get opiates to make money from their sale. Since this criminal diversion has reached a high proportions of the legal need for opiates, doctors find prescribing them an ever increasing hassle) and give us the neccessary tools to deal with pain. For the severely advanced, PWP, the time left is best lived as comfortably as possible. cs

I didn't realize pain was part of parkinsons. I have pd and I have chronic pain. My pain is in areas where I have orthopedic problems stemming from car accident, but in other areas where I am just plain stiff. I too wake up in morning barely able to roll off the bed without screaming in pain. I am on pain medication daily and feel terrible that I need to take it, but the alternative is not pleasant. I would rather reduce my pain as best I can. Why suffer unnecessarily. I guess now have something else I can blame on parkinsons. It's amazing how many areas in your body are affected by parkinsons.

Hi....I find that as with any illness/disease...it is so hard to communicate to others ,the degree of pain you are in and how it draws you down when it is incessant.I cope with all the tremors,the odd quirks,the incoherent babble etc etc and everything visual that pd brings with it...yet I am at a loss sometimes to say exactly how much pain I am in and what the pain is like.Like many of you here,I am in constant pain every day,the degree obviously differing...and am taking diclofenac every day to knock the edge off the pain.However...it is at nighttime when I am truly in agony and cannot seem to find a comfortable resting place for my right arm.If I lay on it it hurts...if I lay on the other side it feels like a lead weight crushing my body then the tremors start.I guess that`s why I am here at this time mostly.....[the middle of the night in the uk]
However....I recently discovered something which has helped ease this a little.I just have to tempt my husband into buyng it for me.
Enough said here...I may strike a new thread with this .
Meanwhile..thanks for any articles which help in this area...much appreciated.
Steffi