Parkinson's Disease Tulip


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Old 01-07-2017, 07:25 PM #31
IBAL IBAL is offline
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Scottsuff,

Sorry too hear about your infection. From what I understand it usually starts in one place and follows the wires. The wires in my neck are still sensitive but don't bother me unless I push on them. So I don't. Going Wednesday for my next adjustment and will have them take a look see. On top of my head I have the bumps where the cage was screwed in to my skull.The doc said that these probably will not get much better. I'm a bit of a hypochondriac so all of this gets to me. Another reason I waited so long. They didn't shave my head like I thought they would because they only opened my skin where they drilled. Let us know how you are doing.
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Old 01-07-2017, 10:44 PM #32
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Hang in Scott, just a bump in the road to getting your life back....sending good thoughts your way....

Eric
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Old 01-08-2017, 10:31 AM #33
soccertese soccertese is offline
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again, thanks for sharing scott. i'm really benefitting from your experience as i'm sure many others are but for some reason won't click the thankyou tab.
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Old 01-09-2017, 12:05 AM #34
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Quote:
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Today I had a little setback. I found out I have an infection. That's nothing to take lightly.I had complained about a stiff neck and the dr was observing me. I had sent him a half dozen pics. A small spot on my head they pressed on, and it opened up.Then he pressed on the side of my head, and it was quite tender. The odd thing is when he pressed on the Neurotransmitter,it wasn't sore, and it had quite a bit of infection on it. They drained blood from me to use with cultures, to narrow the antibiotic down.When I come home, I'll be on a pic line to finish the course of treatment, over the next couple months.Not helping my cause!
Blog update Terrible Day
Scottsuf.blogspot.com
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Old 01-09-2017, 08:08 AM #35
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Ah Crap! It happens.

Did they have to remove the brain leads?

I just hope for the best, and a speedy recovery.

On the humor side of life, I was trying to figure out why your kids went to University of Texas, when you live in Tennessee. Oh, what... I'll just blame Parkinson's for that one. Super cool your daughter is going back to school to work on Speech Pathology.

I wish you the best.
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Born 1958. Diagnosed PD 2014.
Meds Sept 2016: 5x daily: 2 - Sinemet 25/100 + 200mg Comtan; 50/200 ER Sinement (bedtime).
Oct 2016 - DBS - bilateral GPi (PD & Dystonia). Still a work in progress. (Reduced meds to 4 - 25/100 & 50/200 ER Bedtime daily; but need six months to see how DBS/Meds play out)
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Old 01-09-2017, 01:41 PM #36
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Scott,
Sorry about the setback. Keep leaning on your great family, they will help you get through this. You are a strong, retired AF officer and will clear this hurdle. Good thoughts continuing your way.

Eric
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Old 01-10-2017, 11:09 PM #37
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Quote:
Originally Posted by TexasTom View Post
Ah Crap! It happens.

Did they have to remove the brain leads?

I just hope for the best, and a speedy recovery.

On the humor side of life, I was trying to figure out why your kids went to University of Texas, when you live in Tennessee. Oh, what... I'll just blame Parkinson's for that one. Super cool your daughter is going back to school to work on Speech Pathology.

I wish you the best.
Yep, they removed everything I heard that it happens to about 2% - 3%. I'm just a lucky dude. Your another Texan with UT confusion it seems.
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Old 01-12-2017, 01:15 PM #38
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Hi Scott - Just returned from Key West yesterday, very sorry to hear about the complications, please let us know when you start to feel better.

I do know one thing, the fact that you're a Vet and I'm not confirms that
you'll be just fine, just a matter of time. Hang in there, buddy, I keep finding
evidence of bizarre health issues that are cured somehow. And, I actually
hate to broach the following topic because I know many people will roll their
eyes or burst out laughing. But, I don't know of another online community
that will offer and intelligent response I've had ED since I was 40, and I
turn 59 next month. Since DBS, I have had no issues in that Dept. Has
anyone else had a similar experience?!

David
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Old 01-12-2017, 01:37 PM #39
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Quote:
Originally Posted by bluesking View Post
Hi Scott - Just returned from Key West yesterday, very sorry to hear about the complications, please let us know when you start to feel better.

I do know one thing, the fact that you're a Vet and I'm not confirms that
you'll be just fine, just a matter of time. Hang in there, buddy, I keep finding
evidence of bizarre health issues that are cured somehow. And, I actually
hate to broach the following topic because I know many people will roll their
eyes or burst out laughing. But, I don't know of another online community
that will offer and intelligent response I've had ED since I was 40, and I
turn 59 next month. Since DBS, I have had no issues in that Dept. Has
anyone else had a similar experience?!

David
can't say i had a similar experience. sounds like you got the deluxe DBS. though
are you kidding? if not, you may have a "gold mine" there. just need to find a bioengineer who can wire one up without the need for brain surgery, find some investors ...
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Old 01-15-2017, 03:52 PM #40
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Well, I have to say, sounds like so much BS to me, too.

There has to be some kind of reference in the medical annals,
I just can't find one.

And yes, it didn't make sense to me to have that problem at the
tender young (LOL) age of 40, either, just like it doesn't make
sense that DBS would cure it. And just when you thought my
DBS 'experience' couldn't get ANY strange, consider the fact that
I had chronic skin diseases, with Rosecesia (red scaly skin- I know
that isn't the correct spelling) that has absolutely disappeared since
Oct. 16. However, for this particular problem, I recall running across
something that indicated this could be a early sign of PD, which does
make sense in my particular situation. Some others, such as increased
amounts of body hair in undesirable locations that are lessened
considerably after DBS may actually get me banned from the board
(LOL) but guys and gals, I couldn't make this stuff if I tried....@!

One thing that I do know. This may not be a cure. But nevertheless,
it is a miracle. No one will ever convince me otherwise.
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