Parkinson's Disease Tulip


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Old 01-20-2017, 11:30 PM #51
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Originally Posted by made it up View Post
Hi David,
Perhaps get neurologist to give you a range you can use and that isn't too great that you can get into too much trouble with?
I think D.I.Y. is a much gentler and far more convenient way to go.
I might go up but only by 0.1V at a time then give that setting a few days to notice any changes as thats how long it often takes.
Then you might want to try 0.1V up or even find you were better off on the setting you had it on and go back to what it was.
I doubt the settings will go up a great deal more as too high can mess with you mentally as well as cause you to physically feel worse.
I agree with you about battery life the main thing is that you benefit from it.
Good luck
I agree with Made It Up, but I'm new in this game of tweaking neurotransmitters, but everyone says it's a long term game of adjust today for results in a couple weeks.
Good luck
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Old 01-23-2017, 01:30 PM #52
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Default Go, Scott!

This is all fantastic news, Scott! I'm not so happy about my weight gain (30 lbs) as you are with your 20-lb. gain, but I need to get started on. Healthy diet anyway.

So glad the infection worked out.
Praying for you. Oh, and I had no idea that you had been a lurker for so long!
Peggy
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Old 02-07-2017, 12:50 AM #53
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Default Update

Small update to blog
Fighting infection
Scottsuf.blogspot.com
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Old 02-07-2017, 02:47 PM #54
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Hang in there Scott....
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Old 02-07-2017, 04:03 PM #55
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Default Well....

And to think that I had it bad. Ha!!!!! I honestly think
that what most potential DBS'ers can glean from all of this
is that the chances are ridiculously high that they will never
have to go through what Scott went through. Thank Goodness
for men like Scott that have the courage to take on something
like this. Yeah, I went through it too. But, looking at Scott's
facial expression, I would be the 1st to admit that man could
kick my *** quicker than I could pop another Sinimet!!!
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Old 02-08-2017, 11:02 AM #56
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I think being on is best. You could fall or hyperextend your knee. There is a bunch of footwork. Also it depends what your symptoms are. My left leg will go weak first, and that takes me out of the game for the most part. From trial and error I know on a decent day I can take meds at 1 PM on my way to class, complete the class by 330 and will need another round of meds by 4 PM. Then the positive effects of the class will extend me into the evening somewhat.
Hope that helps.
I've had DBS Mar 2016 and already my battery needs replacement! But I don't regret it. Of course, an infection is more serious! They say scratching your healing itchy wounds is a big infection risk. Thanks for your blog and thanks for your RSBoxing tip. I found a class 45 min from me and it is fun bring around other Parkies. May you be healed soon!
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Old 02-08-2017, 09:39 PM #57
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I've had DBS Mar 2016 and already my battery needs replacement! But I don't regret it. Of course, an infection is more serious! They say scratching your healing itchy wounds is a big infection risk. Thanks for your blog and thanks for your RSBoxing tip. I found a class 45 min from me and it is fun bring around other Parkies. May you be healed soon!
I'm glad you joined a Rock Steady group. I can't work out with them yet, but I can go have a brew with them after class on Mondays! We're supporting each other.
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Old 02-08-2017, 09:43 PM #58
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And to think that I had it bad. Ha!!!!! I honestly think
that what most potential DBS'ers can glean from all of this
is that the chances are ridiculously high that they will never
have to go through what Scott went through. Thank Goodness
for men like Scott that have the courage to take on something
like this. Yeah, I went through it too. But, looking at Scott's
facial expression, I would be the 1st to admit that man could
kick my *** quicker than I could pop another Sinimet!!!
I truly hope and pray that nobody has to go through what I have in the last month. As for the facial expression I was in my happy place! Lol!
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Old 02-08-2017, 09:48 PM #59
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Hang in there Scott....
I'm trying!
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Old 02-21-2017, 09:49 AM #60
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Quote:
Originally Posted by made it up View Post
Hi David,
Perhaps get neurologist to give you a range you can use and that isn't too great that you can get into too much trouble with?
I think D.I.Y. is a much gentler and far more convenient way to go.
I might go up but only by 0.1V at a time then give that setting a few days to notice any changes as thats how long it often takes.
Then you might want to try 0.1V up or even find you were better off on the setting you had it on and go back to what it was.
I doubt the settings will go up a great deal more as too high can mess with you mentally as well as cause you to physically feel worse.
I agree with you about battery life the main thing is that you benefit from it.
Good luck
The lower setting the better as my high settings caused rapid depletion of battery and maybe my balance issue. Left as on 4,8 but went down to 3.5 after new rechargeable battery. Right on 4.3. Two sides on 1 battery. Rech. is nuisance at first but getting used to the 30 min time to recharge. It is supposed to last 9 yrs...we will see. I was worried that my battery would go dead before surgery as I had to wait a month...but they build safety time within battery. No big deal for surgery this time ...outpatient and only sedation. On no meds as nothing works for me so maybe that explains the higher settings. Still worth the trouble and expense! Hang in there!!
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