Parkinson's Disease Tulip


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Old 11-29-2016, 09:52 PM #1
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Default Follow the DBS Road

I've been lurking this great forum for years, so I thought I was overdue contributing to it. Im documenting my steps through a DBS procedure at Vanderbilt Medical Center in a blog. I'll post updates to it as I proceed down the road if I'm able to. I have every intention of posting asap.

scottsuf.blogspot.com

Thanks,
Scott Suff
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Old 12-04-2016, 09:43 AM #2
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Blog update
Scottsuf.blogspot.com
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Old 12-04-2016, 10:00 AM #3
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scott,
your're a very good writer, wish it was on a different topic but thanks for sharing your DBS experience in such detail, it's of great value to me.
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Old 12-04-2016, 11:18 AM #4
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Scott,
I appreciate you putting yourself out there for us to follow and wish you great success with your personal DBS experience. Quick question I may have asked someone earlier, when you go to a Rock Steady session, are you On or Off medwise for maximum benefit?

Eric
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Old 12-04-2016, 11:33 PM #5
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Scott,
I appreciate you putting yourself out there for us to follow and wish you great success with your personal DBS experience. Quick question I may have asked someone earlier, when you go to a Rock Steady session, are you On or Off medwise for maximum benefit?

Eric
I think being on is best. You could fall or hyperextend your knee. There is a bunch of footwork. Also it depends what your symptoms are. My left leg will go weak first, and that takes me out of the game for the most part. From trial and error I know on a decent day I can take meds at 1 PM on my way to class, complete the class by 330 and will need another round of meds by 4 PM. Then the positive effects of the class will extend me into the evening somewhat.
Hope that helps.
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Old 12-05-2016, 01:52 PM #6
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Blog update
Scottsuf.blogspot.com
Blog update
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Old 12-09-2016, 07:31 PM #7
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Blog update
Made it through Stage II. Team was pleased with results. If they were pleased I'm thinking I should be as well. Blog update in works.
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Old 12-11-2016, 03:43 PM #8
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Made it through Stage II. Team was pleased with results. If they were pleased I'm thinking I should be as well. Blog update in works.
A couple of pics while I work on the update, moving a little slower than before.
scottsuf.blogspot.com
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Old 12-11-2016, 07:21 PM #9
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Made it through Stage II. Team was pleased with results. If they were pleased I'm thinking I should be as well. Blog update in works.
Blog update
scottsuf.blogspot.com
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Old 12-11-2016, 08:08 PM #10
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Scott,

Thanks for taking us through your procedure, very unselfish and it will help those of us that will follow. Keep the sense of humor going. Hope the results are great when you get your battery....

Eric
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