Parkinson's Disease Tulip


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Old 12-26-2016, 11:01 AM #1
flashinet flashinet is offline
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Default Pain after dyskinesia episod

I had bad case of dyskinesia for 12 hours after increasing dose of levodopa 10%
Im now on much lower dose, so dyskinesia now is not a problem. But my right leg which received a lot of spasms was left almost disabled. For 4 days I had to use two caned to make a few steps muscle relexant didnt help much.
After 3 days being unable to walk i tried vicodin which gave me sharp pain for 10 min, next day i tried oxycontin and as result i am in er with very bad pain and unable to walk even with canes.
Here in ER doctors tried muscle relaxant - didnt work and shot of ibuprofen painkiller- cause sharp pain again. So doctors domt know what to do?
Any advise?
Thanks.
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Old 12-30-2016, 02:11 PM #2
TexasTom TexasTom is offline
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One thing I would do is avoid any pain killers. I have a horrible time with my colon stop working, pain killers (opioids) make that much worse.

Back off on your meds, as you have already done. Try to find a massage therapist who does deep tissue work. I always comment "that's it, I'm never coming as ouch that hurts". I get massive knots, but the next day I feel much better. So for the last five years I keep saying "never again" but makes a difference the following day.
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Born 1958. Diagnosed PD 2014.
Meds Sept 2016: 5x daily: 2 - Sinemet 25/100 + 200mg Comtan; 50/200 ER Sinement (bedtime).
Oct 2016 - DBS - bilateral GPi (PD & Dystonia). Still a work in progress. (Reduced meds to 4 - 25/100 & 50/200 ER Bedtime daily; but need six months to see how DBS/Meds play out)
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Old 12-30-2016, 07:50 PM #3
flashinet flashinet is offline
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Thank you TT.
Now I am more clear on what happened.
Dyskinesea spasms caused nerve pinch by the herniated disk. Because i had all kinds of pain in the leg it masked plnched nerve. And for 3 days when the nerve was so severely plnched it reacted with stronger pain to oplum painkiller.
I had hard time to convince my pretty young nurse that the2 perkosets she had for me can just kill me. From 1am to 4 am i was calling nurse, yellng , asked to try zanax, but she was stronger than stone. Finally being ready to jump out of the window,
i gave up, took her pills and in 5 min started feeling very heavy heaviness spreading from the foot up.
Then a miracle happenned: I fell asleep and woke up with much less pain.
What I guess that that night the nerve was pre released by muscle relexor pills and the painkillers Played by the rulles - killed the pain, not me.


Thanks.

Last edited by flashinet; 12-30-2016 at 07:54 PM. Reason: Fix
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