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Old 03-07-2017, 11:27 AM #1
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Default MDS Washington

I have moved to Marysville, Washington near Everett. Can anyone recommend a movement disorders specialist that brings a smile to your hypomimic face?
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 03-08-2017, 08:57 AM #2
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My doctor is John Roberts at Virginia Mason in Seattle. I recommend him without reservation. Welcome to the Northwest!
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Old 03-08-2017, 10:01 PM #3
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Default Re: DBS

Gerry - I don't recall what your earlier posts said about
DBS - is that an option that you would consider?
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Old 03-09-2017, 10:04 AM #4
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Default Dbs

Quote:
Originally Posted by bluesking View Post
Gerry - I don't recall what your earlier posts said about
DBS - is that an option that you would consider?
Yes, I would. I will discuss it with whatever doc I choose.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 03-09-2017, 10:24 AM #5
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OK, let me know if I can provide any info and/or
encouragement. Maybe it's unrealistic for everyone
to potentially end up with the results I did, but
I can't imagine results better than this---
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Old 03-09-2017, 11:15 AM #6
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wow, were're almost neighbors, i'm in renton.
i also use john roberts who is part of a top notch healthcare organization -VIRGINIA MASON - who is a really nice guy and responds very quickly when emailed via their secure mail system. he's competent and if he can put up with me, someone that doesn't always follow directions, then i'm lucky. i don't think he's someone that would be interested in discussing supplements or alternative treatments, at least the topic has never come up.
John W. Roberts, MD, Seattle Doctors | Virginia Mason
VIRGINIA MASON has an excellent reputation doing DBS. Roberts does the programming so if you want to have the DBS done then i'd at least have one visit with him to discuss DBS.

i would also recommend rodney johnson, bellevue, i met him when i participated in a clinical trial that he was involved in and he was my neuro for 12 years thereafter until obamacare started and i had to find another MDS that would accept my new insurance. JOHNSON doesn't recommend alternative treatments but he will work with you if you need his help and is very open minded if you provide sufficient evidence. he wrote RX's for low dose naltrexone, iv glutathione plus supplies for doing the IV, and drugs so i could self chelate. nothing that extreme but not something every MDS would do. I think his group does DBS
Peripheral Neuropathy Bellevue WA - Rodney Johnson, M.D. Ph.D. - General Adult Neurology Issaquah WA

there is an alternative med professional in the area
Laurie Mischley, ND - Research | Bastyr University
i've never used her but she is very well known.

of course there's the BOOTH GARDNER PARKINSON'S CARE CENTER which might provide more comprehensive care, i have never used them. they are in kirkland right off the freeway. I think VIRGINIA MASON does their DBS.
Booth Gardner Parkinson’s Care Center - EvergreenHealth, Kirkland, WA
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Old 03-09-2017, 09:00 PM #7
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Quote:
Originally Posted by soccertese View Post
wow, were're almost neighbors, i'm in renton.
i also use john roberts who is part of a top notch healthcare organization -VIRGINIA MASON - who is a really nice guy and responds very quickly when emailed via their secure mail system. he's competent and if he can put up with me, someone that doesn't always follow directions, then i'm lucky. i don't think he's someone that would be interested in discussing supplements or alternative treatments, at least the topic has never come up.
John W. Roberts, MD, Seattle Doctors | Virginia Mason
VIRGINIA MASON has an excellent reputation doing DBS. Roberts does the programming so if you want to have the DBS done then i'd at least have one visit with him to discuss DBS.

i would also recommend rodney johnson, bellevue, i met him when i participated in a clinical trial that he was involved in and he was my neuro for 12 years thereafter until obamacare started and i had to find another MDS that would accept my new insurance. JOHNSON doesn't recommend alternative treatments but he will work with you if you need his help and is very open minded if you provide sufficient evidence. he wrote RX's for low dose naltrexone, iv glutathione plus supplies for doing the IV, and drugs so i could self chelate. nothing that extreme but not something every MDS would do. I think his group does DBS
Peripheral Neuropathy Bellevue WA - Rodney Johnson, M.D. Ph.D. - General Adult Neurology Issaquah WA

there is an alternative med professional in the area
Laurie Mischley, ND - Research | Bastyr University
i've never used her but she is very well known.

of course there's the BOOTH GARDNER PARKINSON'S CARE CENTER which might provide more comprehensive care, i have never used them. they are in kirkland right off the freeway. I think VIRGINIA MASON does their DBS.
Booth Gardner Parkinson’s Care Center - EvergreenHealth, Kirkland, WA
Thanks for the comprehensive survey of PD specialists, Soccertese. I was hoping for someone this side of the Seattle traffic jam but I will go where the action is. I like aspects of each of them but who knows, maybe they aren't taking new patients anyway. It looks like a tough decision.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 03-09-2017, 09:07 PM #8
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Quote:
Originally Posted by Nan Cyclist View Post
My doctor is John Roberts at Virginia Mason in Seattle. I recommend him without reservation. Welcome to the Northwest!
Thanks for the recommendation, Nan. The Northwest is spectacularly beautiful. I am moving in with my son and his family so as long as the volcanoes don't rumble and the Cascadia subduction zone doesn't subduct too quickly, I should be happy here. Sunshine is so overrated.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme,
Palmitoylethanolamide (PEA) Updated 9/21/17.
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Old 03-09-2017, 09:38 PM #9
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maybe this will help, but i think mds's are going to be in king or pierce counties - seattle or tacoma. just time your appts between 10am and 12am, you might miss the traffic . if you seriously want to see if you qualify for DBS don't delay, you might not qualify in the future. SWEDISH is huge and they do the most DBS's by far and have the most MDS's. SWEDISH just had a scandal in their neurosurgery dept, dunno if NEUROSURGEONS doing DBS's were involved.
on avg. seattle gets less rain than N.Y. city, but by chance were're having the wettest year on record. great for skiers!

Swedish CEO resigns in wake of Seattle Times investigation | The Seattle Times


Provider Directory | Northwest Parkinson's Foundation | Northwest Parkinson's Foundation
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Old 03-09-2017, 11:36 PM #10
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I hiked for four hours today in the mountains in the rain. It was lovely.
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