FAQ/Help |
Calendar |
Search |
Today's Posts |
|
05-19-2017, 07:51 AM | #1 | ||
|
|||
Junior Member
|
Quote:
We ordered this from Europe a couple weeks ago and it just arrived in the U.S. with no problems. The company says that it occasionally gets held up in customs but usually delivers with no problems. Feel free to message me with any questions. The study results were impressive but with only 30 treated patients and no control group, I know not to place too much stock in it. But while I'm skeptical, we're also becoming a bit more desperate, so it seemed worth a try. My mom will start this slowly because she tends to be sensitive. I'll update in a month or so about whether she is receiving any benefits (or having any side effects).
__________________
Looking for different options for my mom, born 1946 and dX with PD in 2010. |
||
Reply With Quote |
05-20-2017, 04:42 PM | #2 | ||
|
|||
Member
|
Amazon offers PEA. Search 'palmitoylethanolamide'.
|
||
Reply With Quote |
05-21-2017, 02:35 PM | #3 | |||
|
||||
Wisest Elder Ever
|
This substance is pretty benign... mostly because it is not well absorbed. You have to make sure you use only micronized (processed PEA to reduce particle size). This costs more money.
The PEA downside is that its poor solubility leads to failure. It has been around for quite a while, and still we see little about it.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
Reply With Quote |
"Thanks for this!" says: |
08-04-2017, 09:18 AM | #4 | ||
|
|||
Junior Member
|
Quote:
She took 400mg per day, which is I believe slightly less than what was taken in the Italian study of 30 or so patients. She started and stopped it twice (for reasons explained below). On the third day of taking it each time, she experienced a "bump" and was more energetic and active. Very possibly a coincidence or a placebo effect, but i wanted to note it nonetheless. She discontinued it both times (after about ten days) because she is convinced that it makes her temperature issues worse. (My mom is developing pretty significant autonomic dysfunction where she has intense periods of heat/sweating during the day.) These heat flashes - unrelated to menopause - were worse when she was on the PEA and it was hard for her to stay hydrated. This was odd to me because I had read the study carefully (even bought the full study so I could read the details) and I didn't see this side effect reported. But everyone is different, and my mom tends to be sensitive. And that was our experience. Generally, I think the side effects are minimal/nonexistent. My mom was just unlucky on this. Let me know if you'd like more info -- and best wishes to everyone in their pursuit of treatments to keep this disease at bay!
__________________
Looking for different options for my mom, born 1946 and dX with PD in 2010. |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
PARKIES do the Tango to improve life? - medical study video | Parkinson's Disease | |||
impressive 'feat' | Peripheral Neuropathy |