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08-04-2017, 09:18 AM | #9 | ||
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She took 400mg per day, which is I believe slightly less than what was taken in the Italian study of 30 or so patients. She started and stopped it twice (for reasons explained below). On the third day of taking it each time, she experienced a "bump" and was more energetic and active. Very possibly a coincidence or a placebo effect, but i wanted to note it nonetheless. She discontinued it both times (after about ten days) because she is convinced that it makes her temperature issues worse. (My mom is developing pretty significant autonomic dysfunction where she has intense periods of heat/sweating during the day.) These heat flashes - unrelated to menopause - were worse when she was on the PEA and it was hard for her to stay hydrated. This was odd to me because I had read the study carefully (even bought the full study so I could read the details) and I didn't see this side effect reported. But everyone is different, and my mom tends to be sensitive. And that was our experience. Generally, I think the side effects are minimal/nonexistent. My mom was just unlucky on this. Let me know if you'd like more info -- and best wishes to everyone in their pursuit of treatments to keep this disease at bay!
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Looking for different options for my mom, born 1946 and dX with PD in 2010. |
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