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06-07-2017, 04:01 PM | #11 | ||
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Junior Member
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I certainly hope your DIY experiment is successful! I have additional thoughts/questions. Please PM me if you have a minute. |
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06-07-2017, 10:48 PM | #12 | ||
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Junior Member
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Well, you are right about being patient with results. Did you see my post on NTcell and stopping progression? NZ company and they seem to be doing well. |
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06-08-2017, 08:20 AM | #13 | |||
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Wisest Elder Ever
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Chronic use of the tetracycline family (minocycline and doxycyline) can trigger pseudotumor cerebri (intracranial hypertension) which can damage the optic nerves. So if you have not had evaluation for this, now is the time to do so.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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06-08-2017, 11:20 AM | #14 | ||
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Junior Member
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Thanks! |
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06-08-2017, 11:23 AM | #15 | |||
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Administrator
Community Support Team
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Hello PDman
The forum has a default number of posts required before new members can PM Once you reach that, the PM system will open up for you.
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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06-10-2017, 11:22 AM | #16 | ||
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Member
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At the rate my PD progression is going, in a year or so I may be dead or in a nursing home for indigent patients, wheel chair bound, stuck in a corner, heavily drugged and drooling. As we know, there aren't many drug options on the table that can potentially slow or stop this progression. I am willing to take a chance on doxycycline. I believe my primary care doc will prescribe it for me. At this stage of the game there's not much for me to lose.
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06-10-2017, 09:41 PM | #17 | ||
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Member
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Sorry not up on Doxycycline so won't comment on it. Blackfeather, maybe you have a bit of depression? Do you see a movement disorder specialist for management of P.D.? If not it might be worthwhile. As far as Drs in general practice go which I think a primary care physician is I'd be more inclined to hear what an MDS who lives and breathes P.D. would come up with plus other medical staff like a speech therapist, physiotherapist, occupational therapist who specialise in P.D. |
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"Thanks for this!" says: | johnt (06-11-2017) |
06-11-2017, 01:00 PM | #18 | ||
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06-15-2017, 05:45 AM | #19 | ||
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Junior Member
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I'm starting to take 20 mg/day doxycycline, and I'm continuing to discuss the pros and cons of this with my neurologist.
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06-20-2017, 12:43 PM | #20 | ||
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Junior Member
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Still taking 20 mg/day of doxy, no ill effects observable.
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