Parkinson's Disease Tulip


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Old 09-07-2017, 05:27 PM #21
made it up made it up is offline
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Hi Bogusia,
Sorry all for sort of going off the Mucuna thread but Bogusia I just wanted to take the subject of nobody at work knowing you have P.D.
Been there done that and its exceptionally hard work covering up when there are off times if and when people if they did know could well turn out to be understanding, kind thoughtful and show they genuinely want to accomodate you in whichever way they can.
Just my thoughts but hiding something as obvious as PD is hard work.
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Old 09-07-2017, 07:53 PM #22
lurkingforacure lurkingforacure is offline
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Originally Posted by wxxu View Post
I agree with lurk that sometimes we don't get much benefit from Sinemet, sometimes none at all especially when eating some protein foods not "planned". This is a big problem for me because you cannot give up meat, fish and those with good nutritious resources you need. Does MP interfere with any common protein food? Is this the reason that you take the MP at the same time with Sinemet if MP does interfere with protein? Thanks/Will
We are unfortunately in that group of people who can't eat so much as a cracker without it interfering with sinemet. Early on we tried to skip eating all day, and that did give our best effect with sinemet, but that is just not possible to sustain. Who can go without eating all day so their sinemet works, day after day? We couldn't.

Enter mucuna. We can have oatmeal, a salad, toast, even a breakfast taco or sandwich, and the mucuna will still take effect. Obviously the heavier the meal the longer the mucuna will take to hit, but unless we've eaten a steak and basket of fries, we can actually eat and still get benefit from mucuna.

This is our experience, though, and everyone is different. I personally believe there are compounds in mucuna we don't know about that impact its efficacy. I'm no chemist, but I do know how we feel when we take sinemet and how we feel when we take mucuna.
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Old 09-07-2017, 11:56 PM #23
wxxu wxxu is offline
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Quote:
Originally Posted by lurkingforacure View Post
We are unfortunately in that group of people who can't eat so much as a cracker without it interfering with sinemet. Early on we tried to skip eating all day, and that did give our best effect with sinemet, but that is just not possible to sustain. Who can go without eating all day so their sinemet works, day after day? We couldn't.

Enter mucuna. We can have oatmeal, a salad, toast, even a breakfast taco or sandwich, and the mucuna will still take effect. Obviously the heavier the meal the longer the mucuna will take to hit, but unless we've eaten a steak and basket of fries, we can actually eat and still get benefit from mucuna.

This is our experience, though, and everyone is different. I personally believe there are compounds in mucuna we don't know about that impact its efficacy. I'm no chemist, but I do know how we feel when we take sinemet and how we feel when we take mucuna.
Thank you Lurk! I do not care what are these compounds as long as they still kick in and give me the "ON" I need. I currently take 4 bills of Sinemet + 1 Sinemet ER for night. I have been as such for 1-1/2 years and so far no Dyskinesia observed. My doc does not want me to take Sinemet for more than 6 bills a day. I have to eat protein in order to prevent from losing weight and muscles and keep myself to have the energy to walk at least 1 mile a day. I will try MP... Thanks/Will
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