Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 09-07-2019, 06:34 PM #21
sim00's Avatar
sim00 sim00 is offline
Member
 
Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
sim00 sim00 is offline
Member
sim00's Avatar
 
Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
Default Updating

Hi everybody, after 3+ years from DBS surgery, I feel very well, I don't take any medicine, except Xadago, I work 8+ hours a day, 5 on 7 days a week, in other words: a regular life ...
__________________
Sim00

Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016.
sim00 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
johnt (09-07-2019)

advertisement
Old 09-10-2019, 09:25 AM #22
MseeM MseeM is offline
New Member
 
Join Date: Sep 2019
Location: Alberta, Canada
Posts: 2
5 yr Member
MseeM MseeM is offline
New Member
 
Join Date: Sep 2019
Location: Alberta, Canada
Posts: 2
5 yr Member
Default

so how are you now after 3 years?

Quote:
Originally Posted by sim00 View Post
Hi everybody.
I'm back here to share my amazing experience with you, after more than 1 year from my DBS surgery.
I would like to embrace all of you and tell you that after DBS surgery, in July 2016, today (September 2017) I am not taking any medicine and I feel really good.
Today I'm 48, I have Parkinson's disease since I was 36 years old. I took about 1g of Levodopa, until the day of DBS, and today I take nothing.
From January 2017 I go to the gym every day, for about 2 hours, and from 84 kg I'm slim up to 76 kg.
I love you all.
MseeM is offline   Reply With QuoteReply With Quote
Old 02-22-2021, 06:11 AM #23
sim00's Avatar
sim00 sim00 is offline
Member
 
Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
sim00 sim00 is offline
Member
sim00's Avatar
 
Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
Default Update

hi everyone,
last month the surgeons replaced my neurostimulator (Medtronic Activa PC) after about 5 years (the batteries were almost empty). Now I have a rechargeable neurostimulator (Medtronic Activa RC) implanted. I have to recharge it about every 10 days, but its duration is 15 years.
__________________
Sim00

Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016.
sim00 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
johnt (02-23-2021)
Reply

Tags
day, dbs, levodopa, life, surgery


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
DA clears Ventec Life Systems’ VOCSN portable life support device MuonOne ALS News & Research 0 05-01-2017 10:22 PM
'I love my life': Steve Gleason reflects on life with ALS, 6 years after terminal dia MuonOne ALS News & Research 0 01-09-2017 02:06 PM
A Short Life: Memories of a Native Son and what Life Now Holds Alffe Survivors of Suicide 4 05-12-2011 11:45 PM
Amorfix Life Sciences develops two vaccines that extend life in Amyotrophic Lateral S BobbyB ALS News & Research 0 10-09-2007 01:43 PM


All times are GMT -5. The time now is 06:40 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.