great news sim00. i'm jealous. just curious, what did it cost you? i cancelled my DBS, tough decision after 14 years since diagnosis, due to obamacare uncertainty. my insurance approved it but there was no guarantee i'd have insurance that i could afford if any major problems cropped up before i qualified for medicare in 2.5 years. just a terrible system here.

Hi Soccertese, here in Italy the public health system is free for everyone. I also have a private health insurance, but I didn't need it. I don't know how much cost DBS surgery, but in any case I think not less than 30,000€ ($35,000=$23,000 for Medtronic DBS device + $12,000 for surgeon + staff doctor). If you need more details please contact me in pvt.

I'm very sorry to hear that you have not been able to do surgery for DBS because of a law problem. I wish all those who suffered like me because of Parkinson's disease could have another chance to live a "normal" life. Since I did DBS surgery I didn't any absence of work, I drive the car alone and I feel safe, I leave my home at 7.00 am to accompany my children at school and return in the evening at 8.00 pm after being in the gym or other things.

Best wishes my friends.

Hi Sim
Thank you so much for sharing this information. It's wonderful to hear! I'm so glad you are doing so well. Your story is very inspiring. I am the same age as you and diagnosed at 38, although I had symptoms a couple years before - so we are on a similar path. I am still doing ok - although I have met with the DBS Dr's and had a long consultation. It's definitely in my future. I know everyone reacts differently, but it's wonderful to hear your story! Keep up the great work in the gym!

Thank you very much dear Anagirl, you are very kind, but also very wise.
In fact I was also willing to try anything, and I really tried everything but not dbs surgery.
I was very frightened at this idea, I thought I could not succeed, but when you have no other option, an unexpected force arrives and you say okay, well I do it because afterwards I'll be fine as I didn't remember anymore.
The truth is that currently, dbs surgery is the only viable exit path. For those who are not candidates, for example age ..., the other alternative, though more laborious, remains the duodopa with PEG.

Thank you for such a positive post. Do you have tremor dominant PD or rigidity? Does the DBS help with fatigue, brain fog, slowness, rigidity?

Trixiedee

Hi Trixiedee, sorry for the late reply, but this is due to the fact, that since I underwent DBS surgery, I am always very busy all day. I am literally reborn. My PD is bradykinetic-rigid type, but since the day of DBS surgery, I forgot all the symptoms, and more importantly, I forgot all the medicines. About 18 months have passed today. I go to the gym regularly every day, after leaving work. Before DBS surgery I had an average of 5 days per month of absences from work, after DBS surgery, I was at home 3 days for a common flu, in 18 months.

Best wishes.

How many others on this forum have experienced DBS? Steve does not post much anymore but I believe he is doing much? better. Peg posted a lot before her DBS but rarely does now.
How many DBS candidates were turned down because of PD psychosis (my wife) and how many were accepted for DBS even if they did have any degree of PDP?

hi
i know many who have PD.Some of them have had dbsMost of them were disappointed of their outcomes.I myself would never have it as mine is the stiff guy.In my area I think it is being oversold,another sign of how our care is going.No longer professional and patient.Now we are just customers .
I have had very good results over the last 7 years to use meds at a minumn and rely more on concetration and exercise