FAQ/Help |
Calendar |
Search |
Today's Posts |
09-20-2017, 07:20 AM | #1 | |||
|
||||
Member
|
Hi everybody.
I'm back here to share my amazing experience with you, after more than 1 year from my DBS surgery. I would like to embrace all of you and tell you that after DBS surgery, in July 2016, today (September 2017) I am not taking any medicine and I feel really good. Today I'm 48, I have Parkinson's disease since I was 36 years old. I took about 1g of Levodopa, until the day of DBS, and today I take nothing. From January 2017 I go to the gym every day, for about 2 hours, and from 84 kg I'm slim up to 76 kg. I love you all.
__________________
Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
|||
Reply With Quote |
"Thanks for this!" says: | badboy99 (01-08-2018), Bogusia (09-22-2017), eds195 (09-20-2017), gctee48@gmail.com (05-04-2021), GerryW (01-08-2018), Hardisk70 (04-18-2021), KNPV (01-08-2018), lab rat (01-08-2018), RLSmi (09-21-2017), soccertese (09-21-2017) |
09-20-2017, 07:42 AM | #2 | ||
|
|||
Member
|
Hi Sim,
Welcome back! It's great to hear that you are doing so well. Two hours at the gym every day is quite a lot. What kind of exercises do you do during that time? Jeff |
||
Reply With Quote |
"Thanks for this!" says: | sim00 (09-20-2017) |
09-20-2017, 08:29 AM | #3 | |||
|
||||
Member
|
Quote:
I do Treadmill, cyclette, abs, and sanarium, sauna, jacuzzi, etc.
__________________
Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
|||
Reply With Quote |
"Thanks for this!" says: | jeffreyn (09-20-2017), soccertese (09-21-2017) |
09-20-2017, 09:38 AM | #4 | ||
|
|||
Magnate
|
great news sim00. i'm jealous. just curious, what did it cost you? i cancelled my DBS, tough decision after 14 years since diagnosis, due to obamacare uncertainty. my insurance approved it but there was no guarantee i'd have insurance that i could afford if any major problems cropped up before i qualified for medicare in 2.5 years. just a terrible system here.
|
||
Reply With Quote |
"Thanks for this!" says: | sim00 (09-21-2017) |
09-21-2017, 02:20 AM | #5 | |||
|
||||
Member
|
Quote:
I'm very sorry to hear that you have not been able to do surgery for DBS because of a law problem. I wish all those who suffered like me because of Parkinson's disease could have another chance to live a "normal" life. Since I did DBS surgery I didn't any absence of work, I drive the car alone and I feel safe, I leave my home at 7.00 am to accompany my children at school and return in the evening at 8.00 pm after being in the gym or other things. Best wishes my friends.
__________________
Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
|||
Reply With Quote |
"Thanks for this!" says: | billybiffboffo (09-21-2017), soccertese (09-21-2017) |
09-21-2017, 11:11 AM | #6 | ||
|
|||
Member
|
Hi Sim
Thank you so much for sharing this information. It's wonderful to hear! I'm so glad you are doing so well. Your story is very inspiring. I am the same age as you and diagnosed at 38, although I had symptoms a couple years before - so we are on a similar path. I am still doing ok - although I have met with the DBS Dr's and had a long consultation. It's definitely in my future. I know everyone reacts differently, but it's wonderful to hear your story! Keep up the great work in the gym!
__________________
Born 1970, Diagnosed 2008 - Currently taking Sinemet 1/2 pill every 2-3 hours. Daily exercise, experiments with different supplements. |
||
Reply With Quote |
"Thanks for this!" says: | sim00 (09-21-2017), soccertese (09-21-2017) |
09-21-2017, 04:14 PM | #7 | |||
|
||||
Member
|
Quote:
In fact I was also willing to try anything, and I really tried everything but not dbs surgery. I was very frightened at this idea, I thought I could not succeed, but when you have no other option, an unexpected force arrives and you say okay, well I do it because afterwards I'll be fine as I didn't remember anymore. The truth is that currently, dbs surgery is the only viable exit path. For those who are not candidates, for example age ..., the other alternative, though more laborious, remains the duodopa with PEG.
__________________
Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
|||
Reply With Quote |
"Thanks for this!" says: | anagirl (09-22-2017) |
10-04-2017, 11:14 AM | #8 | ||
|
|||
Member
|
Thank you for such a positive post. Do you have tremor dominant PD or rigidity? Does the DBS help with fatigue, brain fog, slowness, rigidity?
Quote:
|
||
Reply With Quote |
"Thanks for this!" says: | sim00 (01-08-2018) |
10-17-2017, 06:20 AM | #9 | ||
|
|||
Junior Member
|
Quote:
Sim - My story isn't quite as incredible, but close! 59 years old, previously taking 14 capsules daily, now 5. and my heroes, Dr. Griffith and Dr. Kaplan of Kansas City, have left me with NO TREMOR. David |
||
Reply With Quote |
"Thanks for this!" says: |
01-08-2018, 04:24 AM | #10 | |||
|
||||
Member
|
Quote:
Best wishes.
__________________
Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
|||
Reply With Quote |
"Thanks for this!" says: | badboy99 (01-08-2018), soccertese (01-08-2018) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
DA clears Ventec Life Systems’ VOCSN portable life support device | ALS News & Research | |||
'I love my life': Steve Gleason reflects on life with ALS, 6 years after terminal dia | ALS News & Research | |||
A Short Life: Memories of a Native Son and what Life Now Holds | Survivors of Suicide | |||
Amorfix Life Sciences develops two vaccines that extend life in Amyotrophic Lateral S | ALS News & Research |