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09-20-2017, 02:37 PM | #1 | ||
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I was diagnosed with pd 12 years ago. Slight tremor in the left arm. Difficulty swallowing. The symptoms were mild for the first 10 years. But now my right arm is joining the party. And the most unexpected symptom is that when I wake up, if the house temperature is colder than usual (60 degrees or less), my whole body starts shaking dramatically including my mouth in which my teeth clack together so loudly that I think I'm going to break off a tooth -- or several. Anyone else have this following sleep? Any way that you have been able to alleviate it?
Thanks, Jpm |
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09-20-2017, 05:36 PM | #2 | ||
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Senior Member
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Since getting PD I've been less able to deal with cold temperatures. I get the whole body shivers that you describe if I get too cold.
I suspect that this is fairly common amongst PwP. Hood and Amir write [1]: "The human core body temperature rhythm rises throughout the day to peak in the early evening, then falls throughout the night to reach its nadir in the early morning ... In PD, only the amplitude of the rhythm appears to be decreased. This change is attributed to a lowering of peak body temperature relative to healthy age-matched controls." Reference [1] "Neurodegeneration and the Circadian Clock" Suzanne Hood1 and Shimon Amir Front Aging Neurosci. 2017; 9: 170. Neurodegeneration and the Circadian Clock John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | aquario (09-21-2017) |
09-21-2017, 08:40 AM | #3 | ||
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Magnate
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what is your avg body temp? i'm hypothermic which my neuro says is pd related, my avg body temp is 97.3 but can go down to 96.0. but i don't feel that cold, strange. sorry can't offer any advice.
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09-21-2017, 01:03 PM | #4 | |||
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Junior Member
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Ah the cold! I avoid getting cold as it exacerbates all my symptoms, especially tremors.
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Diagnosed Apr 2013 (age 55). First symptom was anxiety 6 yrs earlier. First tremor May 2010. Unmedicated till May 2014. Sinemet 5 x 100/25 /d Selegiline 5mg x 2/d till May 2016. Switched to Amino Acid protocol May 2016. Now taking 13.5g /day Mucuna, 6 Cysreplete/d, 2 Neuroreplete/d and 300mg B6/d. |
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"Thanks for this!" says: | aquario (09-21-2017) |
09-21-2017, 02:22 PM | #5 | ||
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Member
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I've never measured it -- though my wife and two cats call me Billy BTU since I seem to generate a lot of heat and they all strategize ways to get closer at night.
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"Thanks for this!" says: | soccertese (09-21-2017) |
09-22-2017, 08:50 AM | #6 | ||
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Junior Member
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Oh boy. I am seriously considering moving to NC from FL. I am in NC now, having evacuated south Florida. I never really had a "test" with regards to thermal issues. I hope I won't be horribly sensitive to the cold in NC because it does get cold here in NC during winter, whereas I never got cold in FL. I lived there for about 15 years. Still undecided about moving, though. I do loathe hurricanes. I went through Wilma and never want to see something like that again.
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11-18-2017, 07:15 PM | #7 | |||
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Member
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Cold isn't good for me...starts a whole body tremor and leg pain. I start wearing long John underwear and heavy knee socks when temperature gets to 60 F
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