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09-29-2017, 12:04 AM | #1 | ||
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Senior Member
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The results of a new study show [1]:
"Contrary to previous research, caffeine may not relieve movement symptoms for people with Parkinson's disease". The research paper is behind a paywall, but the abstract says [2]: "Caffeine did not provide clinically important improvement of motor manifestations of PD (Class I evidence). Epidemiologic links between caffeine and lower PD risk do not appear to be explained by symptomatic effects." Reference: [1] That cup of coffee may not relieve Parkinson's symptoms -- ScienceDaily [2] Caffeine as symptomatic treatment for Parkinson disease (Cafe-PD) John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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09-29-2017, 09:02 AM | #2 | ||
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Senior Member
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This may well be, but I think if someone benefits, or thinks they benefit, from a cup or two of coffee, that's all that really matters |
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"Thanks for this!" says: | johnt (10-01-2017) |
09-30-2017, 11:13 AM | #3 | |||
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yes.... I have found that sometimes coffee ~feels good (and beneficial) and sometimes it doesn't and its pretty easy for me to discern as my body is very clear on this one ....I do better with coffee than either green tea or chai tea which are both a definite no .
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Smooth seas do not make skillful sailors.... Nature loves courage. “The day science begins to study non-physical phenomena, it will make more progress in one decade than in all the previous centuries of its existence.” ~ Nikola Tesla |
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"Thanks for this!" says: | johnt (10-01-2017) |
10-01-2017, 08:07 AM | #4 | ||
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Senior Member
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lurkingforacure and moondaughter make a good point: it is the individual that matters. If a therapy truly works for person X, that fact is not changed if it doesn't work for person Y or, indeed, everyone else. Seeing the therapy work for other people just increases our estimation of the accuracy of our assertion that it truly works for X.
We have a partial ordering of therapies: - works for all the people, all the time; - works for some of the people, all the time; - works for all the people, some of the time; - works for some of the people, some of the time. As if that wasn't complicated enough, throw in the distinction between a therapy that gives symptomatic improvement and one that slows disease progression. Throw in pragmatics, such as cost, genetics, PwP preparedness to take part in clinical trials, the placebo effect, the sometime non-publication of adverse results, and the accuracy and resolution of the measurement process. Mix all these up, and it's no surprise that progress is so slow. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | moondaughter (10-01-2017) |
10-01-2017, 10:45 AM | #5 | |||
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speaking of time...... I would add that our general linear perception of ~t i m e itself is that it is linear rather than cyclic (thanks to the Roman calendar) which feeds a common misperception that the experience of pd is just one long or short downhill decline rather than recovery from sx being possible.....( what....no brain plasticity??) like the infinity symbol figure 8......the gregorian experience of time is much more complex and I think very relevant as pd is an experience of literally being frozen in t i m e All the best to you MD p.s. just noticed the smiley face at the end of this post came up (a very relevant) blue (instead of yellow)....but I just typed semi colon /parenthesis on the keyboard!! hmmmmm wonders never cease! (pun ~ intended ???) lol
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Smooth seas do not make skillful sailors.... Nature loves courage. “The day science begins to study non-physical phenomena, it will make more progress in one decade than in all the previous centuries of its existence.” ~ Nikola Tesla Last edited by moondaughter; 10-01-2017 at 11:27 AM. |
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10-01-2017, 11:09 AM | #6 | ||
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Magnate
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I haven"t really tested this but tea does contain a small amount of amino acids which may reduce l-dopa absorption. this would only affect advanced pd'ers that depend on frequent dosing of l-dopa. again, just a theory.
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"Thanks for this!" says: | moondaughter (10-01-2017) |
10-09-2017, 06:27 PM | #7 | ||
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Junior Member
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But the catch is how long can I sit before get stuck.C/l does extend mobility.Ive done thi for 6 years. Hot showers also works wonders,lol |
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