Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 06-25-2018, 02:47 PM #1
ScottTX ScottTX is offline
Newly Joined
 
Join Date: Jun 2018
Posts: 3
5 yr Member
ScottTX ScottTX is offline
Newly Joined
 
Join Date: Jun 2018
Posts: 3
5 yr Member
Default Atypical Parksinsons/General Encephalopathy

About a year ago my mom (just turned 70) was walking, talking & enjoying time with friends (in an assisted living facility). Since then she has lost the ability to speak, walk, feed herself or any activity at all. She is in a wheelchair, transferred by a lift from bed to wheelchair & back & living in a private residence with around the clock nurses. Neurologist has said she has Atypical Parkinsons (not sure which one) & general Encephalopathy (again nothing specific) through all of the testing. I am always looking for answers or any suggestions to care for her better & keep her comfortable. She currently is only taking carbidopa levodopa. She has become rigid & this has helped. Her feet have turned inward & it looks/seems very uncomfortable. At this point we have been told to just keep her comfortable & no further plans for any type of treatments or solutions.
ScottTX is offline   Reply With QuoteReply With Quote

advertisement
Old 06-27-2018, 11:30 PM #2
made it up made it up is offline
Member
 
Join Date: Oct 2006
Posts: 376
15 yr Member
made it up made it up is offline
Member
 
Join Date: Oct 2006
Posts: 376
15 yr Member
Default

Quote:
Originally Posted by ScottTX View Post
About a year ago my mom (just turned 70) was walking, talking & enjoying time with friends (in an assisted living facility). Since then she has lost the ability to speak, walk, feed herself or any activity at all. She is in a wheelchair, transferred by a lift from bed to wheelchair & back & living in a private residence with around the clock nurses. Neurologist has said she has Atypical Parkinsons (not sure which one) & general Encephalopathy (again nothing specific) through all of the testing. I am always looking for answers or any suggestions to care for her better & keep her comfortable. She currently is only taking carbidopa levodopa. She has become rigid & this has helped. Her feet have turned inward & it looks/seems very uncomfortable. At this point we have been told to just keep her comfortable & no further plans for any type of treatments or solutions.
Scott, I'm not sure if the term atypical P.D. and Parkinson plus syndrome are the same but I think it could be as in maybe MSA (multiple system atrophy) or one of the other similar syndromes that can benefit initially from levodopa but not to the extent that a typical P.D. person would.
The fact that your Mum initially benefited from levodopa could be that she has P.D. but is underdosed.
That or maybe its something related to P.D. that responds to levodopa but not to the same extent.
Can you arrange for her to be examined by a neurologist who specialises in movement disorders?
Best wishes.
made it up is offline   Reply With QuoteReply With Quote
Reply

Tags
atypical, comfortable, encephalopathy, living, wheelchair

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Atypical Parksinsons/General Encephalopathy ScottTX General Health Conditions & Rare Disorders 1 06-25-2018 08:23 PM
could it be encephalopathy anon1028 Traumatic Brain Injury and Post Concussion Syndrome 1 07-12-2014 04:02 PM
Hashimoto`s encephalopathy HEmale General Health Conditions & Rare Disorders 1 02-10-2009 11:02 AM
encephalopathy flopper General Health Conditions & Rare Disorders 0 04-03-2008 09:18 PM


All times are GMT -5. The time now is 10:29 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.