Parkinson's Disease Tulip


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Old 08-13-2018, 06:06 AM #1
johnt johnt is offline
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johnt johnt is offline
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Default Your ideas for gadgets to improve QOL of PwP

There has been a series of programmes, called "The Big Life Fix", on British TV recently. The last of the present series in on BBC2 this Thursday at 2000. (You can pick up the programmes from this series that have already aired on iPlayer). On these programs three or four people present, each with a disability. For each of these problems an engineer, or two, tries to come up with something that improves their life. For instance, in the last series a PwP called Emma had her tremor reduced by wearing a band of vibrating motors around her wrist.
See thread:
Invention for reducing tremor

I think something similar could work on this forum.

Do you use any anti-PD gadgets now, and do they "work", at least in part?

What unmet needs do you have that you think a gadget could be built to improve your quality of life?

In this context, a reply asking for a cure for PD would not be very useful, it being too difficult to find a solution. A better one would be to improve your walking. Even this is probably too broad. Perhaps, it would be better to focus on festination (taking short steps on tiptoe).

For each need we could brainstorm for possible ways to improve the problem. For instance, perhaps using your smart phone to act like a metronome might help.

John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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eds195 (08-13-2018)

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Old 08-13-2018, 05:33 PM #2
made it up made it up is offline
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Thanks John for starting this thread.
I'm a big fan of the laser light to normalise my gait and get me going.
For those of you who aren't familiar with it and want to try the light attach it to your waist pointing it down or if you use a frame attaching it to the frame.
It can't be seen in broad daylight but other than that its easily seen indoors or at night etc.
My daughter in law is a physio with a doctorate in falls prevention and she's impressed by its use in PWP who experience FOG in particular.
Worth a try!
Lee
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