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Old 09-18-2018, 07:34 PM   #1
CarolynS
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Confused Dbs

I confident this has been asked before, but when I search for posts I found none, whivpch I thought odd.

Those who have DBS, it what point did you feel it necessary for you?

My tremor is sooooo problematic I rarely can put my debit/credit card in the reader at a store. The cashier has to do it for me.

Writing, forget it. I don’t even print anymore if I want it read.

I gave up my hobby, actually passion, after 48 years because of my tremor. Very frustrated.
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Old 09-19-2018, 01:37 AM   #2
made it up
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Quote:
Originally Posted by CarolynS View Post
I confident this has been asked before, but when I search for posts I found none, whivpch I thought odd.

Those who have DBS, it what point did you feel it necessary for you?

My tremor is sooooo problematic I rarely can put my debit/credit card in the reader at a store. The cashier has to do it for me.

Writing, forget it. I don’t even print anymore if I want it read.

I gave up my hobby, actually passion, after 48 years because of my tremor. Very frustrated.
Hi Carolyn,
I shudder to think what would've become of me without the benefit of DBS done almost 15 yrs ago.
I don't have a tremor so can't help you with your exact question but I truly believe you've answered it yourself and are ready to go down that road.
Best wishes.
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Old 09-19-2018, 02:37 PM   #3
zanpar321
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Hi Carolyn,
I shudder to think what would've become of me without the benefit of DBS done almost 15 yrs ago.
I don't have a tremor so can't help you with your exact question but I truly believe you've answered it yourself and are ready to go down that road.
Best wishes.
Tremor was my main symptom and DBS dropped it about 95%! Yeah. I decided to have the surgery when my tremor got annoying. No I wasn't restored to the days of my youth but I highly recommend DBS. Suggest you find an experienced surgeon. I asked him how many DBS surgeries he had done, if any patients had died or gotten infections. My surgeon is one of the best!
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Old 09-23-2018, 09:20 AM   #4
JoClay
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The tremor was very problematic. When the neurologist indicated that the medication was approaching the point where the maximum amount that could be taken was being reached, it seemed DBS was the next step to be taken. After DBS, tremor has been reduced about 75%. The same decision to have DBS would taken again, without a doubt.
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Old 10-01-2018, 01:38 PM   #5
Sigster
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Quote:
Originally Posted by CarolynS View Post
I confident this has been asked before, but when I search for posts I found none, whivpch I thought odd.

Those who have DBS, it what point did you feel it necessary for you?

My tremor is sooooo problematic I rarely can put my debit/credit card in the reader at a store. The cashier has to do it for me.

Writing, forget it. I don’t even print anymore if I want it read.

I gave up my hobby, actually passion, after 48 years because of my tremor. Very frustrated.
Dx in 2010, DBS in early 2014. I had two bouts of blood clots (PE) that nearly killed me and some speech challenges. Fast forward to today and wife and I talk about how wonderful DBS has been. Tremors reduced by 80 to 90% most days thanks to Rytary, exercise, and the VA in Ann Arbor Michigan...
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Old 10-31-2018, 11:15 AM   #6
ScottSuff
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About 1.5 years ago i went for it and had DBS. I blogged the odeal. you can check it out at Scottsuf.Blogspot.com
Follow the DBS road
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Old 10-31-2018, 05:22 PM   #7
eds195
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Hope you are feeling well Scott, it's been a while and your daughter as well.

Best,
Eric
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Old Yesterday, 04:23 PM   #8
Blackfeather
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I had an appointment with my Neuro/MDS yesterday. She recommended that I should have deep brain stimulation surgery. She is of the opinion that I am a good candidate. I am being referred to another neurologist for evaluation. I would be getting the Boston-Scientific veraci system, which I was able to look at in her office.
DBS wasn't even something that I was considering at the time. I'm somewhat nervous, as this DBS idea was sudfen and there is a lot to consider. Any thoughts, suggestions or advise would be appreciated. Thanks
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Old Yesterday, 09:01 PM   #9
ScottSuff
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Hope you are feeling well Scott, it's been a while and your daughter as well.

Best,
Eric
I'm feeling pretty good,considering I've been fighting this **** for 15 plus years. Can't complain or at least I shouldn't. LOL
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