Parkinson's Disease Tulip


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Old 05-20-2019, 11:25 AM #1
dan1000 dan1000 is offline
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Confused Brain fog when starting Rytary

I've been experiencing some "brain fog" (slow thinking, can sit and stare into space without it getting boring) after starting Rytary 95mg, even on just 1 capsule per day. No other meds being taken other than Vitamin B12 and D3.

When I tried adding a 2nd 95mg capsule per day (about 8 hours after the first one), it got worse.

I've been taking 1x 95mg capsule per day for about 4 weeks now, so perhaps that's long enough that if it were going to self-resolve, it would have done so by now.

I've noticed a little lift in mood and motivation, and sex is easier. No effect on stiffness or tremor. I'm 3 years into my diagnosis.

Has anyone else experienced something similar, and if so, had any success counteracting it?

Any and all insights appreciated.

Dan
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Old 05-22-2019, 10:00 AM #2
soccertese soccertese is offline
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How do you do on JUST carbidopa/levodopa? have you talked to your neuro about this?

i have gotten "brain fog" from some generic c/l and 50/200ER and didn't try to work thru it, just switched back to my preferred generic. this happened when my independent pharmacy didn't order my preferred generic which back then was TEVA but unfortunately they don't make C/L anymore. i am using MYLAN now. i assume the brain fog is from fillers and/or colors used.
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dan1000 (05-23-2019)
Old 05-23-2019, 09:36 AM #3
dan1000 dan1000 is offline
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Quote:
Originally Posted by soccertese View Post
i assume the brain fog is from fillers and/or colors used.
That's really interesting - something I haven't considered. This is my first experience with C/L. I will talk to my neurologist

Thanks

Dan
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Old 06-23-2019, 06:58 AM #4
birte birte is offline
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Default generics are shamefully ineffective and potentially harmful

Quote:
Originally Posted by soccertese View Post
How do you do on JUST carbidopa/levodopa? have you talked to your neuro about this?

i have gotten "brain fog" from some generic c/l and 50/200ER and didn't try to work thru it, just switched back to my preferred generic. this happened when my independent pharmacy didn't order my preferred generic which back then was TEVA but unfortunately they don't make C/L anymore. i am using MYLAN now. i assume the brain fog is from fillers and/or colors used.
Hallo, Soccertease,

I remember you, I was once very active on the PD forums. but got distracted by poetry,, I have returned because of my struggle with generic meds, They dob't work. Some are even harmful, and we are powerless against them. I also took Teva C/L 25/100 for many yearsand was very satisfied with its effect. then Teva sold the drug to Maine, and the Maine c/l pills are a lottery, Some give me up to four hours of relief, some make my head hum very loudly and cause yawning and feeezing body temperature, some make my offs dramatic with major tremor and brain fog.
For a brief time I was able to get the original Sinemet, and I felt really well, but the manuf. can not keep up with the demand, so I must take Maine c/l again. I tried Rytary to very ill effect. I tried,, at my Dr.'s suggestion to increase my dosage of c/l, and I had strange and beautiful hallucinations. "I saw things".
I have also taken Requip for many years. I was given generic Ropimirole to save OptimRX money, and Mylan's version caused depression.I have contacted the food and drug admin.
I have contacted the different generic co.s to try to find out what could be done, for the situation is really intolerable, but no one seems to really care. There must be many of us pD'ers who think it is the disease that is causing their decline. th e doctors' answer is usually TAKE MORE MEDICINE, but in PD more medicine very often means more progression. At the right strength the right medicines can give us limited relief, the drug companies have it in their power to relieve our symptoms, and they choose to take the money and to let us down.
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Old 07-29-2019, 03:08 PM #5
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I call it "stupor".
(or intellectual death, Take your pick.)
It's with me most of the time, generally (but not always) gets better late evenings/night. Taking 9x145 mg Rytary (3x morning, 3x afternoon, 3x bed time)

Don't recall how it was with carbidopa/levodopa. Switched a few years back. I did mention this to my doctors, with no adequate response or action.


Quote:
Originally Posted by dan1000 View Post
I've been experiencing some "brain fog" (slow thinking, can sit and stare into space without it getting boring) after starting Rytary 95mg, even on just 1 capsule per day. No other meds being taken other than Vitamin B12 and D3.
Dan
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Old 07-29-2019, 03:25 PM #6
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Quote:
Originally Posted by soccertese View Post
i assume the brain fog is from fillers and/or colors used.
Not in my case. Because of swallowing problems, I open the Rytary capsules and drop the powder on my tongue, discarting the empty capsule.
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Old 07-29-2019, 03:41 PM #7
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I assume you can go back to regular C/L temporarily with your doctor's help. here's the inactive ingredients in rytary
"The inactive ingredients are microcrystalline cellulose, mannitol, tartaric acid, ethyl cellulose, hypromellose, sodium starch glycolate, sodium lauryl sulfate, povidone, talc, methacrylic acid copolymers, triethyl citrate, croscarmellose sodium, and magnesium stearate. The capsule shells all contain gelatin and titanium dioxide. All blue capsule components contain FD&C Blue #2 and Yellow iron oxide. All yellow capsule components contain yellow iron oxide. All capsules with black imprinting contain iron oxide black. All capsules with blue imprinting contain FD&C Blue #2."

it would take some work to see if there are posts stating side affects from any of these ingredients causing your spaciness.

here is the pkg insert which describes how many people dropped out of the rytary clinical trials and the reasons they gave.
Rytary (Carbidopa and Levodopa Capsules): Side Effects, Interactions, Warning, Dosage & Uses
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