Parkinson's Disease Tulip


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Old 10-08-2019, 07:21 AM #1
Claire W Claire W is offline
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Join Date: Oct 2019
Location: Ashford Kent UK
Posts: 5
3 yr Member
Claire W Claire W is offline
New Member
 
Join Date: Oct 2019
Location: Ashford Kent UK
Posts: 5
3 yr Member
Arrow New to this site

I'd like to post a new thread, but can't find option to do that.
Would like to talk about my situation. Perhaps I don't have the necessary permissions yet.
I'm living with Parkinson's disease. It worsened considerably after I moved home, to what I thought would be more suitable accommodation. I'm not settled here however. I've been very disturbed by workmen at my windows at unpredictable times.
I live alone.
I went on Madopar, but found side effects intolerable when I tried to increase one of the doses beyond 12.5 / 50 : delirium, nightmares and ridiculously bad insomnia. I've been kept hanging on awaiting a neurologist appointment, which is tomorrow.
Meanwhile my father is ill, friends have been in hospital, I've had to give up driving. My parents live 25 miles away.My walking is slow, and i use a stick. I feel as if I'm on a moving boat much of the time. A friend who was helping me with lifts, had a slight accident the other day when I was with him : he seemed to just lose concentration, and there should be a question mark over his fitness to drive.
I'm anxious about many things, and very depressed.
I have to do my shopping online, and was recently let down by the supermarket in question, when they failed to deliver any of my ready meals. Luckily friends helped out, getting the food for me.
Another friend (so called) said she thought the symptoms i described were all in my imagination. Very hurtful. She's been unwell after reconstructive surgery, but even so, what a cruel thing to say.
Yoga has been a good thing. Some people have been kind and helpful too.
I've lost 2 stones in weight, and i need new clothes, which is not proving easy, without transport, and with the Parkinson's thing of finding it difficult to manage bags, stick, purse etc.
I also developed a number of infections (probably due to the Madopar) which made symptoms worse.
I just need to share this stuff. My life has changed almost beyond recognition.
Thank you for reading and for caring.
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