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10-08-2019, 01:54 PM
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Co-Administrator
Community Support Team
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Are you on any meds now? For PD or anything else?
Does the UK have any Meals on Wheels type programs? For those that need meals delivered , free or pay what you can. Look for local disability assistance dept, city, county or churches that may help you find resources to help?
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10-08-2019, 02:38 PM
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Grand Magnate
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Hi Claire
Welcome to NeuroTalk; I hope that you will find the community as knowledgeable and supportive as I have  .The PD forum is very active. I trust that the information in it will be helpful for you. All the best.
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10-09-2019, 05:14 AM
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New Member
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On Madopar and Nortriptyline (just started) for depression. Meals on wheels exist, but my Madopar regime is very strict re timing of meds and food. Also I need to be available for medical or other appointments. I think meals on wheels can be delivered any time between 11.30 and 1 pm.
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10-09-2019, 04:55 PM
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Co-Administrator
Community Support Team
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When med/s are not working, or start to have too many side effects, contact your dr office and let them know right away. They may get you in quicker or possible change or adjust your meds over the phone.
Is Madopar the first PD med you've tried? Some put the delivered meals in refrigerator and heat & eat later.
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10-13-2019, 06:43 AM
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I've seen neurologist, who told me to stay on Madopar, as it's probably preventing some symptoms, and is adding in Ropinirole, preceded by 3 days of Domperidone.
Not started them yet, as I'm still getting used to Nortriptyline, an antidepressant which is supposed to have some benefit with PD. Also I've got another UTI, so will be back on antibiotics. Good point, could refrigerate meals. But would still be unable to go to appointments if waiting in for food delivery. |
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11-12-2019, 04:11 PM
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Member
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Welcome Claire W. The meds will take some time to get used to. You may never be able to tolerate some of the agonists. Don't be afraid to tell your doctor that you cannot tolerate an agonist. You will, however, have to get used to the carbidopa/levodopa. Nice to meet you.
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"Beer is proof positive that God loves us and wants us to be happy"...Ben Franklin. These forums are for mutual support and the sharing information only. The forums are not a substitute for medical advice, diagnosis, or treatment provided by qualified health care professionals. Always consult your doctor before trying anything you read about here. |
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11-12-2019, 06:38 PM
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Senior Member
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Claire,
Welcome to the forum. Getting the anti-Parkinson's drugs right is difficult and requires a lot of trial and error. This is made harder if you can only see your doctors infrequently. But, once you get the drug regimen right you have a good chance of having a good quality of life for many years. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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