... with all those prime time PD hours after dx? Well, most of us "commoners" have to work as long as we physically can, but that usually means only on average about 5-7 years after DX, depending on how "bad" you were at DX. The "lucky" ones may get ten years before they have to pack it in.
Then what do you do?
Well, the question usually ends up not what do you WANT to do, but what CAN you do. First you have to realize that PD affects us all differently, so pay no attention to the stories you hear from others who often say "well Uncle so and so has PD, and he goes for a mile walk every day and works out at the gym too". Well that may be true and God bless Uncle so and so, but don't think that you can do the same "if i only try hard enough". Sure it's best to try to optimize what you can do, but don't get all upset if you can't live up to the expectations of others. This is what I started this thread for. I want t make it quite clear to all who read this that sometimes we are dealt a king and a four against the houses' jack and an ace. Some of us just CANT do the things that someone else even more advanced with PD can do. This is completely normal, so i just want those who don't have an idea of what PD is like to just LAY OFF you, and accept this as a TRUTH.
No , it is not to be used as an excuse to give life any less effort than your BEST, but it is to be refferere to when you become PUSHED to "do better".
When i was 4 years into this monstrosity of a disease, a neurologist told me that i "could do better than that". I could not do any better than my best efforts to work, but i felt so guilty that she was right that i damn near offed myself in the process.
Don't let this happen to you. IN doing so, i once brought myself up to nearly two grams of Dopa a day, along with adjuncts. I was so messed up from the drugs that it did much more harm than good. I think that this point is what sets us doen the long road to serious depression, a road that we could avoid, if we believe in ourselves and know our capabilities and limits and to heck with what others say.
I hope that most of you agree with what i have to say, if not, let me know why you should push yourself to the limits of your abilities and what you hope to accomplish by this. cs