Parkinson's Disease Tulip

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Old 03-13-2020, 10:33 AM #1
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Default Our "Tips" and "Laws" for the Parkinson´s. 25 years of experiences (1994-2019).

“Even though nothing changes,
if I change, everything changes."

Marcel Proust



(The result of more than 25 years of experience from my sick father (1994-2012) and myself and a lot of advice from many sick people and specialists. Please, let's not start from scratch and take advantage of what it took so much effort and pain to bring many people together).

I think we should open our minds to keep the best, whatever works, whether old or modern, orthodox or heterodox, with the guidance of the doctor and a mixture of courage and prudence.

by Jesus Marquez Rivera (Parkinson's here and now).


Throughout all those years we learned certain "tips" that helped us a lot. We also came up with something like our unwritten Parkinson's "laws." Not only our daily experiences, but also the advice of the neurologists my father visited and of many sick people and veteran carergivers who treasured an experience of extraordinary value that must serve everyone, always adapted to each particular case by the advice of the doctor and the pharmacist.

SIMPLE "TIPS" THAT WERE USEFUL TO US.

A small sample of the simple "tips" we learned from readings, conversations and daily experience. These habits are easy to incorporate into everyday life and they should always be consulted with the neurologist:

1. Take the medication (levodopa) 20-30 minutes before eating. The doctor will adapt the appropriate time to the circumstances of each patient. In this way, once you start eating, the stomach will have passed the medication into the intestine, and digestion will not delay or hinder the absorption of levodopa.

2. Taking the medication with a cold drink facilitates the act of swallowing to avoid choking.

3. Adding lemon juice to the drink (we use half lemon juice), facilitates the assimilation of levodopa by the stomach's pH and by its vitamin C content.

4. A little cold cola can help prevent or reduce nausea. Never "light" or "zero" (contains aspartame, which is suspected to be neurotoxic. But the debate remains open.)

5. Take one or two golden kiwis or gold before breakfast. Its richness in antioxidants and neuroprotective nutrients did him a lot of good (vitamin C, lutein, folate, magnesium, vitamin E, chromium).

6. Leave the night before several dried black plums without bone to soak in a glass of water covered with a plate. In the morning, my father drank the water and ate the plums. Mucilages and other substances from plums are one of the best natural laxatives. It also contains about 20 antioxidants. Consult your doctor if you have diabetes.

7. As long as my father was consuming one or two glasses of "gazpacho" a day, he never caught a cold and his health in general improved. Then we learned that tomato protects neurons from the neurotoxic residues of levodopa (Suganuma 2002). Gazpacho is a drink typical of the Mediterranean diet, made with water, ripe tomatoes, cucumber, etc.

8. The use of the medicinal plant passiflora in drops (extract in vegetable glycerin, not in alcohol) along with the medication was good for him. In the last few months we had to reduce the amount because his body, already so weakened, suffered too much drowsiness during the day. Passionflower also boosts levodopa and is rich in tyrosine, the precursor to dopa (and dopamine).


OUR "LAWS" ABOUT PARKINSON'S .


We were treasuring knowledge that we called the "laws" of the disease (so important they seemed to us):

1. Do not stop the medication at once. Some neurologists mention hospital admissions or surgery as moments to consider very carefully.

2. Do not abuse the medication in order to improve the symptoms. This mortgages the future, since it will shorten the years in which the medication will be effective and will anticipate and increase the adverse effects (dyskinesias, wearing off, etc.).

3. You should eat in the ON phase (when the medication has already begun to take effect). This is more important as the disease progresses (avoid choking, aspiration to the bronchi).

4. Patience (often difficult). What has taken years or decades to get sick cannot be improved or cured in a short time. A food, an infusion or a physical exercise may not have immediate benefit, but it may prevent many disorders and improve the progression of the disease. For example, the control of homocysteine or the consumption of foods rich in antioxidants.

5. The low-protein diet (about 60-80 mg per day) reduces the competition of proteins with levodopa, which is an amino acid and uses the same "carts" to get to the brain. Some experts also recommend the protein redistribution diet, either in small amounts throughout the day, or more often, leave the protein-richest for dinner.

6. The hypocaloric diet is extremely important for neurodegenerative diseases because it favors autophagy (cleaning of cells and extracellular matrix) and benefits the brain in many ways. A diet low in calories and rich in nutrients is a very important key.

I hope you find it helpful.

(I apologize for any possible errors in translating this text from Spanish into English. Thank you for your understanding.)
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Old 03-14-2020, 12:52 AM #2
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Quote:
Originally Posted by parkinsons here-now View Post
“Even though nothing changes,
if I change, everything changes."

Marcel Proust



(The result of more than 25 years of experience from my sick father (1994-2012) and myself and a lot of advice from many sick people and specialists. Please, let's not start from scratch and take advantage of what it took so much effort and pain to bring many people together).

I think we should open our minds to keep the best, whatever works, whether old or modern, orthodox or heterodox, with the guidance of the doctor and a mixture of courage and prudence.

by Jesus Marquez Rivera (Parkinson's here and now).


Throughout all those years we learned certain "tips" that helped us a lot. We also came up with something like our unwritten Parkinson's "laws." Not only our daily experiences, but also the advice of the neurologists my father visited and of many sick people and veteran carergivers who treasured an experience of extraordinary value that must serve everyone, always adapted to each particular case by the advice of the doctor and the pharmacist.

SIMPLE "TIPS" THAT WERE USEFUL TO US.

A small sample of the simple "tips" we learned from readings, conversations and daily experience. These habits are easy to incorporate into everyday life and they should always be consulted with the neurologist:

1. Take the medication (levodopa) 20-30 minutes before eating. The doctor will adapt the appropriate time to the circumstances of each patient. In this way, once you start eating, the stomach will have passed the medication into the intestine, and digestion will not delay or hinder the absorption of levodopa.

2. Taking the medication with a cold drink facilitates the act of swallowing to avoid choking.

3. Adding lemon juice to the drink (we use half lemon juice), facilitates the assimilation of levodopa by the stomach's pH and by its vitamin C content.

4. A little cold cola can help prevent or reduce nausea. Never "light" or "zero" (contains aspartame, which is suspected to be neurotoxic. But the debate remains open.)

5. Take one or two golden kiwis or gold before breakfast. Its richness in antioxidants and neuroprotective nutrients did him a lot of good (vitamin C, lutein, folate, magnesium, vitamin E, chromium).

6. Leave the night before several dried black plums without bone to soak in a glass of water covered with a plate. In the morning, my father drank the water and ate the plums. Mucilages and other substances from plums are one of the best natural laxatives. It also contains about 20 antioxidants. Consult your doctor if you have diabetes.

7. As long as my father was consuming one or two glasses of "gazpacho" a day, he never caught a cold and his health in general improved. Then we learned that tomato protects neurons from the neurotoxic residues of levodopa (Suganuma 2002). Gazpacho is a drink typical of the Mediterranean diet, made with water, ripe tomatoes, cucumber, etc.

8. The use of the medicinal plant passiflora in drops (extract in vegetable glycerin, not in alcohol) along with the medication was good for him. In the last few months we had to reduce the amount because his body, already so weakened, suffered too much drowsiness during the day. Passionflower also boosts levodopa and is rich in tyrosine, the precursor to dopa (and dopamine).


OUR "LAWS" ABOUT PARKINSON'S .


We were treasuring knowledge that we called the "laws" of the disease (so important they seemed to us):

1. Do not stop the medication at once. Some neurologists mention hospital admissions or surgery as moments to consider very carefully.

2. Do not abuse the medication in order to improve the symptoms. This mortgages the future, since it will shorten the years in which the medication will be effective and will anticipate and increase the adverse effects (dyskinesias, wearing off, etc.).

3. You should eat in the ON phase (when the medication has already begun to take effect). This is more important as the disease progresses (avoid choking, aspiration to the bronchi).

4. Patience (often difficult). What has taken years or decades to get sick cannot be improved or cured in a short time. A food, an infusion or a physical exercise may not have immediate benefit, but it may prevent many disorders and improve the progression of the disease. For example, the control of homocysteine or the consumption of foods rich in antioxidants.

5. The low-protein diet (about 60-80 mg per day) reduces the competition of proteins with levodopa, which is an amino acid and uses the same "carts" to get to the brain. Some experts also recommend the protein redistribution diet, either in small amounts throughout the day, or more often, leave the protein-richest for dinner.

6. The hypocaloric diet is extremely important for neurodegenerative diseases because it favors autophagy (cleaning of cells and extracellular matrix) and benefits the brain in many ways. A diet low in calories and rich in nutrients is a very important key.

I hope you find it helpful.

(I apologize for any possible errors in translating this text from Spanish into English. Thank you for your understanding.)
Though I don't have Parkinson's, your advice sounds good to me, particularly since I see several items that I think are good advice for people with MS as well--and maybe for many chronic neurological disorders.

People with MS wouldn't be taking levodopa but items #5, 6, and 7 in your first list are things I've been doing for years. The prune/dried plum routine is slightly different for me, and I don't eat kiwis every day but eat them often. As for gazpacho, I used to make and eat it often but in recent years I just try to eat lots of tomatoes. I also drink 6 oz. of low-sodium V8 juice daily.

In your second list, I've found a low-calorie and low-protein diet to be helpful or at least not harmful.

Thank you for sharing your 25 years of experience with helping your father with his Parkinson's disease.
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Repeal the law of gravity!

MS diagnosed 1980.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10.
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