[VICTORIALOU]

Originally Posted by olsen

Hi, My now deceased husband had Parkinson's disease for 16+ years (he knew he had PD but did not want the diagnosis on his records until he needed meds). I became a member of the old neurotalk forum and then transferred to this site. what has happened to the once robust forum? has another site replaced this one? I continue to keep up with PD news, though not to the level I did when my husband was alive. This forum was such a help to me and my husband for many years. I still check back in to read any new posts and check up on the members . Stay safe everyone, madelyn Levy

Hello Madyln
I iremeember your feedback and entries well. I have ebeen struggling with PD for the last 26 years. I eventually had DBS and it took my tremor away completely but after 4 yeqrs now my mobility has decreased to a point where I am mostly in aa wheel chair all my waking hours. Not as hopeful as I used to be when I was diagnosed in 1997 and was told "Oh in 5 years there will be a cure". Best wishes to all he old timers!