Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 08-12-2021, 12:54 PM #1
olsen's Avatar
olsen olsen is offline
Senior Member
 
Join Date: Aug 2006
Posts: 1,860
15 yr Member
olsen olsen is offline
Senior Member
olsen's Avatar
 
Join Date: Aug 2006
Posts: 1,860
15 yr Member
Default long time member of this forum

Hi, My now deceased husband had Parkinson's disease for 16+ years (he knew he had PD but did not want the diagnosis on his records until he needed meds). I became a member of the old neurotalk forum and then transferred to this site. what has happened to the once robust forum? has another site replaced this one? I continue to keep up with PD news, though not to the level I did when my husband was alive. This forum was such a help to me and my husband for many years. I still check back in to read any new posts and check up on the members . Stay safe everyone, madelyn Levy
__________________
In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices.

~ Jean-Martin Charcot


The future is already here — it's just not very evenly distributed. William Gibson
olsen is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (08-13-2021), Bergamotte (07-16-2022), Chemar (08-13-2021), jeffreyn (08-14-2021), johnt (08-13-2021), Lara (08-13-2021)

advertisement
Old 08-16-2021, 01:05 PM #2
ashleyk ashleyk is offline
Member
 
Join Date: Oct 2006
Location: New England
Posts: 262
15 yr Member
ashleyk ashleyk is offline
Member
 
Join Date: Oct 2006
Location: New England
Posts: 262
15 yr Member
Default Me too.

Hi,
I joined in 2006 and remember the old Braintalk. A lot of members have come and gone. I have been disappointed that the ones who have had DBS, like Steven, have never followed up after. I remember Daffy Duck aka the Godfather. He was irreverent and upset some people but I found his posts interesting.
I too have not posted or visited as frequently now. My wife who has had PD for 20 years now and is with Hospice for the past 3 months, could be many more. I have given up on waiting for the "cure" that is always a year away. I can only say take anti-inflammatories like Curcumen.
ashleyk is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (08-18-2021), jeffreyn (08-16-2021), olsen (02-11-2022)
Old 08-17-2021, 04:11 PM #3
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Default Ditto here

My husband also passed away, after 15 years of Parkinson's, but who really knows how long someone "has" Parkinson's? I was pretty active on this forum as well but became less so when my husband's needs increased and time became scarce.

I found this forum invaluable when we were struggling with Parkinson's. I hope that it continues and is able to help those who come here seeking information, shared experiences, and a sense of community.
lurkingforacure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (08-18-2021), jeffreyn (08-17-2021), olsen (02-11-2022)
Old 10-16-2021, 04:29 PM #4
VICTORIALOU's Avatar
VICTORIALOU VICTORIALOU is offline
Member
 
Join Date: Oct 2010
Location: Los Angeles area
Posts: 241
10 yr Member
VICTORIALOU VICTORIALOU is offline
Member
VICTORIALOU's Avatar
 
Join Date: Oct 2010
Location: Los Angeles area
Posts: 241
10 yr Member
Default

Quote:
Originally Posted by olsen View Post
Hi, My now deceased husband had Parkinson's disease for 16+ years (he knew he had PD but did not want the diagnosis on his records until he needed meds). I became a member of the old neurotalk forum and then transferred to this site. what has happened to the once robust forum? has another site replaced this one? I continue to keep up with PD news, though not to the level I did when my husband was alive. This forum was such a help to me and my husband for many years. I still check back in to read any new posts and check up on the members . Stay safe everyone, madelyn Levy
Hello Madyln
I iremeember your feedback and entries well. I have ebeen struggling with PD for the last 26 years. I eventually had DBS and it took my tremor away completely but after 4 yeqrs now my mobility has decreased to a point where I am mostly in aa wheel chair all my waking hours. Not as hopeful as I used to be when I was diagnosed in 1997 and was told "Oh in 5 years there will be a cure". Best wishes to all he old timers!
__________________
VictoriaLou
.
VICTORIALOU is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
johnt (10-17-2021), olsen (02-11-2022)
Reply

Tags
alive, check, forum, husband, site

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long time lurker, first time poster. rich88 Thoracic Outlet Syndrome 14 04-21-2015 10:53 PM
New member but long time suffer Lone Wolf Trigeminal Neuralgia 1 07-26-2011 06:43 AM
BT1 has lost a long time member Curious Community & Forum Feedback 2 09-05-2006 06:36 AM


All times are GMT -5. The time now is 09:01 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.