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08-17-2007, 03:40 PM | #1 | ||
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Junior Member
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Frustrating perhaps but "socially humiliating disease" ..... come on !!!
Thinking of self and others as being "socially humiliated" makes me wonder about the self condidence and sense of self worth that one is operating under both pre and post DX. What kind of attitude do you exhibit towards others that have some affliction or imperfection???? From Paula's "Mind" thread ,,, Ken |
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08-17-2007, 04:00 PM | #2 | ||
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In Remembrance
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KC
I guess you won't like my rendition of Dionne Warwick either. I find Parkinson's quite socially humiliating - are you dyskinetic? Do you get dystonia? Does your bladder leak? I fail to see what my pre and post dx level of self confidence has anything to do with anything. How did i treat others with conditions? i taught them for ten years. Physically Impaired - in Florida. hmppph paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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08-17-2007, 08:11 PM | #3 | ||
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Member
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but I am with Paula on this one.
I recently was on a cruise and I was very embarrassed when I had to ask a waiter to carry my tea to a table. When I tell them it is PD there is typically a period of embarrassed silence then they move away (or tell me of an aged relative who had PD and died within 3 years). PD to me is a "socially humiliating disease", non verbal communication is very important and I hate having lost it. Neil. |
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08-17-2007, 09:35 PM | #4 | |||
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Magnate
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Quote:
Paula is a person who is out there in the forefront in the advocacy community, so self confidence is not a short coming for her. She doesn't hesitate to get behind a microphone when needed...may not like it a lot, but she does it. And, yes, she was a special ed teacher for those ten years she speaks of. And, if you ever want to know anything about clinical trials or research, she is one of the ones to ask. In all my PD years, I can say that there have only been a couple of times when I was selfconsious in public and that had to do with feeling as though I looked drunk, and feared someone calling the cops on me...typically I was sick with the flu of something that caused my symptoms to be especially bad that day. Okay, okay, I have run on too much AGAIN,
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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08-17-2007, 09:57 PM | #5 | |||
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In Remembrance
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yes - it can be very embarassing -and sometimes my own family makes me feel like a weirdo - weird or not, I believe we are here for a purpose -
just do not knw exactly why? this is from a book I was reading - From our point of view, there are many "crooked" things in life, things beyond our understanding. Most of the things we consider "crooked" have to do with adversity of some sort or another (we don’t seem to complain much when good things happen to us that are beyond our understanding…). Who has not thought life "crooked" when "bad things happen to good people"? Who has not thought life "crooked" when "innocent" children suffer? We have all heard questions asked (even possibly asked by ourselves) of the form: How could a loving God let such and such happen? Yes, life, from our point of view, can be "crooked".
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with much love, lou_lou . . by . , on Flickr pd documentary - part 2 and 3 . . Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these. |
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08-17-2007, 10:08 PM | #6 | ||
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In Remembrance
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Oh boy gonna try to sneak one in quick. The world has free will - it was granted - how do you think we're doing? lol
Of course there have been other ways suggested, but no one agrees which, even though they are all the same and only reinforced the more alike you allow yourself to see it over time.....IT CAN'T BE TRUE! It's almost like everyone is programmed to not allow themselves the hope of actual happiness. Tape over mouth. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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08-17-2007, 10:18 PM | #7 | |||
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Magnate
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Paula, no tape needed...well said.
Tena...yes, life can be and is "crooked"
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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