[Thelma]

I have Parkinson's Disease, Parkinson's Disease does NOT have Her!


And it never will!

[vlhperry]

Laura,

Maybe you remember me from the Dumpster Gang on the porch, when I fought against having to advocate and tenacity was insisting everyone had to advocate back in 1990.


Vicky

[harley]

of course i remember you vicki. remember dumpster. who could forget? remember tenacity too. she shared with me one of my favorite expressions. "God drops neon cows on our heads to make us think." Neon cows? He needs something big and bright enough to get our attention. last i heard she had a f dopa pet scan to find her plight wasnt pd afterall but some other brain thingy. after what.. 17,18 years? bet the neuros are chewing cud now. lol.. good to see you vikki.. how ya been?

[vlhperry]

Tenacity set up a web site which I checked on from time to time, but she no longer seems to keep it up. She had Chiari's syndrome, which could have been curable had she been accurately diagnosed. It was her efforts to have the patient have the right to request any test to help in the diagnosis of PD. She was a great promoter of F=Dopa scans. Unfortunatly, she also was one of the first receipients of DBS surgery, which was of no value for her eventual true diagnosis. After the surgery she suffered from a streph infection that left her with permanent brain damage. So many years ago. I remember you suffered from severe illnesses even before you were diagnosed with PD. You've had a harder life than most. Maybe that is why God gifted you with so much creative/artistic talent. It is a wonderful talent to help yourself and others through the hard times.

Love,
Vicky

[Cando]

Holy cow! (neon of course) This is whawt I love about this forum. This so interesting to me I can't imagine why any one would wawnt tto change it. I am only afrraaid it might become some homoginized bland and boing place of interest to ???? I love discusionthe debate, the social the sientific the poetic the aartistic musical Paastings postings sttories feelinggs lifestyles dx's px's and rxx's ideas imaginations andd proclomations even aadministrations. Thelma here is my "yah" along with many thank yous to everyone who activelly posts ,to those behind the sccene who keepeverything working, for those who care so much for others for those who pray, for those who advocate aand forr those who who may not be any of the above becasuse you give porpose to life. plese forgive the state of my typing (is there a spell check) this is mthird attempt on this and I just don't feeeel like trying to correct .

[shcg]

Freedom of Speech is a most important right. It is our right to be wrong and our right to say the wrong thing. Who's right all the time? Who has all the answers? Freedom of speech is how the truth is known. It's a self regulating process. Very few governments allow Freedom of Speech. An unregulated internet is emerging as our last true place of freedom. This forum is fine the way it is.