[DocJohn]

Thelma here suggested this idea:

Fred's death is bothering me and there has been many who have said "you don't die of Parkinsons Disease". Well it is not true and in the Als forum Bobby B has a "remembrance" column of those who have died from that disease.

Lets start one here and add to it each and every human being that has or will die of Parkinson's.

Let the world know they are wrong.

We can start with Fred's obituary and remember those who have fought the fight.

Please vote on this idea, thank you.

John

[Thelma]

Thanks John

But I do think it is a bit premature. They haven't heard the pros and cons as yet.

Hope they go and see Bobby's efforts before they say yes or no.

[JoClay]

My only concern is Thelma's wording "each and every human being who has or WILL die from Parkinsons". I don't want to see my name in a Memoriam/Remembrance thread before I'm gone. It seems to indicate I've given up.....I definitely have not!

[Thelma]

Sorry about the wording, you are right, I only meant the ones of the future being added somewhere to remember them as well. I certainly didn't mean to give up hope and concious war on this dread disease ever.

I have inopperable Cancer and am very concious of not giving up as yet.

[lou_lou]

Originally Posted by Thelma

Sorry about the wording, you are right, I only meant the ones of the future being added somewhere to remember them as well. I certainly didn't mean to give up hope and concious war on this dread disease ever.

I have inopperable Cancer and am very concious of not giving up as yet.

you have to take its called - germanium - it helps your body regain the pH
level that is healthy -Cancer cant live in a pH balanced body...
my oldest sister has been dxd with 3rd stage cancer, and she did the radiation - ???
but passed on the chemo...

the Dr. Otto Warburger with the nobel laureate - won in 1933 -
new this!
all of us must keep our blood from too much acid or alkaline -either extreme
is not good...

as in all things balance is harder to obtain but = never impossible...
all things are possible if you believe them to be...


Cesium Science
Almost 75 years ago, Otto Warburg was awarded two Nobel prizes for his theories that cancer is caused by impaired cell respiration due to a lack of oxygen at the cellular level. According to Warburg, damaged cell respiration causes fermentation, resulting in hyper-acidity at the cellular level.
In 1984 Keith Brewer, PhD (Physics) translated Warburg's theories into a practical, cost efficient treatment protocol for cancer. Brewer successfully treated 30 patients with various cancers, using Cesium, nature's most alkaline mineral.
The results of Brewer's work -- all 30 survived.
In 1996 Neal Deoul provided financing that enabled T-UP Inc. to become a primary distributor of Cesium and concentrated aloe vera. Hundreds of cancer patients experienced remarkable results using Cesium and T-UP aloe vera in their battles against cancer ...

link - http://cancer-coverup.com/fighters/cesium-science.htm

love you thelma!

[mrsD]

I won't answer the poll since I don't post here much, don't have PD, but I do read here.

This request by DocJohn, reminds me of a situation that happened at OBT.
When a poster passes away, it would be nice if administration could put
IN Memorium under their name. ( or a similar term).

This would alert the whole board, and seems socially the right thing to do.

At OBT for those who were not involved or saw this, the original poster died suddenly and that ID was banned. A family member used it to communicate on the board. This banning was uncompassionate, and stirred up alot of resentment...all things not appropriate to the event. In the end, that ID was restored I believe, but not after much acrimony.

I am sure this would not happen here, but I think it is important to have
some idea as to what would be appropriate in the event of death.

So I just wanted my 2 cents in here...and Thanks to DocJohn for being
available.

[Thelma]

Doc John

What do you see this as meaning. A memorial for the members here only or for all who pass that have had Parkinsons. Can you see a deeper meaning to it as I do or am I just once again ranting lol.

I see it serving the purpose of remembering those who have pased and as an elightening tool for the general public that don't think Parkinsons is that bad a disease.

I also see it as a place where we can all find out who the people really were and how they lived their lives. We lose a great potential in these people and the general public should know.

Or have I got it wrong and this is not what you are thinking about at all.

Thanks for reading

thelma

[DocJohn]

I'm happy to edit the titles appropriately of members who pass away here. I think that's an elegant and respectful way of handling their accounts. Of course, if a legitimate family member asks that their account be removed, I would feel compelled to honor that request too.

Thelma, I think the key here is that this isn't a site devoted to memorials so much as it is one devoted to hope and support. I suspect it can feel very disheartening and depressing for many to visit a site everyday and see a sticky thread that reminds them of death. I know it would feel that way to me.

I think the Internet is a *big* big place and if someone wants to setup a website to record all of the deaths due to any specific disease or condition, I'd definitely encourage them to do so. I'm just not sure this is the ideal place for such...

John

[Ronhutton]

Doc John,
I don't see anything wrong in remembering our friends who have passed away. I think it is a nice gesture to their friends and family, that their loved ones were held in such high esteem. It should give them a measure of comfort. I have always felt that a funeral should not be such an ordeal for their close family, rather they should think of it not as a sad occasion, but as an event where we remember the achievements of the person, and give thanks that they contributed to so much in their life. I feel this was Fred's outlook on life too.
Some Parkies live to a ripe old age, and it may give strength to early diagnosed parkies, that PD is not always a death sentence, just as we say we are all different in our symptoms in life. Outside the emotional feelings, it would build up statistics on mortality of PWP, if we listed age, number of years since diagnosis, and any known information on treatment regime, including non prescription meds. It may help, today's newspaper reports research showing regular intake of vitamin D adds 6 years to the lifespan of anyone taking it. Analysis of the people who lived to a ripe old age may yield a useful lead. However, I appreciate the numbers will be statistically too smallinitially, but you have to start somewhere.
I have reached 70 now, and want to go on enjoying life even though I have had PD for 16 years. Last month, I laid 80 heavy paving stones, and next week I see a specialist about my hernia!!!!! LOL.
Best wishes
Ron

[pegleg]

. . . that this will serve its intended purpose.

Thelma, at first glance this seemed like a great idea; then the more I thought about it, I have changed my opinion.

First, people come here to seek information and support. If I were a newly diagnosed person and came here and read a thread about all those "friends" who died as a result of Parkinson's, I would probably croak myself. And this woould make me depressed if I weren't already.

I guess what I am trying to say is that we need to project an atmosphere here that lends support - not one that scares folks away. And that part that we need to really pay attention to is this: You CAN died from PD, but a diagnosis is not necessarily a death sentence! We need to get that into the heads of legislators and John Q. Public.

EDIT: Hi Ron! I'm sorry that our opinions differ. But in many ways we are on the same wave length. I also meant to say that we may "forget" someone in the proposed memorial, and that could be pretty uncomfortable.

So how do we do that? Every chance we get, we should tell others how devastating PD is - how it changes your body and your mind, and how it can result in death.

So I would vote NOT to mention names here. I hope I haven't offended anyone - that was not my intent.

Peggy