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#1 | |||
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In Remembrance
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This afternoon I filled some capsules with mucuna and gave it a new try. I have been in a pattern of being "off" more and more in the evenings and lately even into the afternoons. Not a happy camper.
So this evening I substituted for my 7:00 feeding of 2X4 mg requip plus 1x200/25 sinemet CR a pair of capsules containing 1 gr of mucuna bean powder each. I am very pleased because it is now 11:00 PM and I am anything but "off" and have done well all evening. I do have a couple of questions- First, if mucuna is about five percent l-dopa as claimed, then have ingested 50 mg in each capsule for a total of 100 mg sans carbidopa. I shouldn't feel a thing. And second, the studies have used doses up to 30 grams and I am testing just 2! So what am I overlooking? Tomorrow will be interesting. ![]() This one's for you, juanhch ![]()
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | imark3000 (02-12-2008), ZucchiniFlower (02-13-2008) |
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#2 | ||
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Member
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Quote:
![]() I use raw powder assuming it has 4% L-dopa (one tea spoon twice daily) and I always thought it has little or no impact on my symptoms which are mild any way. What you are reporting is amazing but I am wondring if the capsule has higher L-dopa % as usually capsules contain 15 to 50 % L-dopa . Can you check this?
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Imad Born in 1943. Diagnosed with PD in 2006. Last edited by imark3000; 02-12-2008 at 04:59 AM. Reason: spelling |
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#3 | |||
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In Remembrance
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from a bag of raw powder.
went to bed at 11;30 still on. up at 1:30 to the loo and was off. now just up at 8:00 and in a little better shape than usual. just took 2 mucuna and 3 ginseng. if i am on before 9;00 am it willl be imrovement.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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#4 | ||
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Member
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... with my best wishes that the +ve effects will continue ..
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Imad Born in 1943. Diagnosed with PD in 2006. |
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#5 | |||
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In Remembrance
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for the experiment. Day got out of control but I did figure out that one needs a lille more to start the day. I will do a better job tomorrow.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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#6 | |||
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In Remembrance
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Yesterday I stayed on with no further meds or mucuna until 7:30PM, which was pretty impressive. Then I went "off" relatively quckly (I know it is spelled incorrectly but it makes such a neat word! :-) ) over a ten mnute span. Took another teaspoon of mucuna mixed with apple sauce and waited....and waited....and etc. Nothing. Gave up and hobbled to bed about 10:00. Slept well and woke up at 7:30 in decent shape. Took 1 sinemet and 2 requip and 1 tsp mucuna. Came "on" in half an hour which is half my usual. It is now 10:30 and I am still in good shape.
About last night. (How's that for an intro? ![]() Time will tell.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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#7 | |||
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Member
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I was going to ask if you also drank water along with the applesauce. I think a suspension of mucuna is absorbed better than the powder mixed with apple sauce. I'm going to mix mine with water, with a small electric mixer and see if it's tolerable like that.
Your capsules plus water worked well, though, so maybe mucuna plus apple sauce plus water would work fine. |
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#8 | |||
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In Remembrance
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No I didn't drink water with it so that may make the difference. Today I took a second teaspoon at 1:00 PM and am still on at 7:00 PM. I think I will try a fourth requip now and see if I coast on in to bed.
Quote:
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | LING (02-16-2008), ZucchiniFlower (02-16-2008) |
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#9 | ||
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Junior Member "Ling"
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Dear Reverett,
Thanks for your detailed and unreserved report on Mucuna. Usually, I will take HP200 in the morning if the stalevo is slow to kick in or if I want a quick start for work. On Dec, I took one teaspoon (7.5g) half an hour after stalevo and was "on" for 6 to 7 hours or even longer BUT with mild dyskinesia ![]() LING |
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#10 | |||
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Member
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Ling, how to you take yours? Do you mix it with water and drink the suspension? And how long does it take to kick in? Thanks.
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