imark3000,

I also exercise for 2 hrs on most days and when I don't I seem that I off times come quicker, do you find the same thing?

I was Dxd about 5 years now and was taking 25x200 and the doctor has reduced it down to 25x100 because of dyskinesa was really bad. It's now settle down a bit but I find that I'm slowing down just like I did when I started all these drugs.

The main thing I want to say is that the exercise is a must for me and I think should be for everyone. I'm wondering how many people on here, use exercise as part of the treatment? I caught a cold last year and stopped all my exercises for 2 weeks and I went down hill fast. (By the way 2 weeks without exercising was just laziness on my part) I don't and won't let that happen again.

I would like to try this Mucuna but I want to start slow and work my way up.
I know we all hate taking Factory made drugs so therefore since I'm on a low dose right now, l think that it would be a good time to start.

I will order the Mucuna and wait till I see my doctor next month and inform him on what I'm doing.

This has been a big eye opener for me.

Thank you all for the info.

Keep up you exercises.

I'm taking LEVOCARB 100/25 every three hours. I was taking 200/25 every 4 hours but it built itself in my body and I had bad reaction to it. I started the lower dose about a month ago tajen it every 4 hours as my doctor suggested but there was to much down time between pills, so I started taking it every 3 hours and it's a little better, but it's not right yet.

I also purchased some Zandopa from India and I'm anxious to hear what my doctor says about it. From what I've been reading in this forum, it's the pure form of the PD drug we are taking, therefore less side effects and better effectiveness all around.

I'd like to hear from other posters that are taking this suppliment how they are doing. Even if my doctor suggest that I don't take this, I'm going to try it, (stubborn streak) and if you guys are interested, I could keep a daily diary of such on this board.

I would like to start it sooner but I have no Idea on how much to start with, can someone advise me. I guess I could start with 1/4 teaspoon and go from there. As matter of fact I'm going to try it first thing in the morning and keep a record of how long it takes to take effect and how long it last. I'll let you know how it goes.

This is a tough one, but I will offer some suggestions. First, be aware that MP is a real drug. It can have both negative and positive effects. Start out very low and increase dosage slowly.

There's been a lot of discussion, so use the search box and read it all. There have been some problems to be aware of.

For me, dyskinesia was one. Just a little too much will set you jumping.

Another was a strengthened "off" phenomenon.

I still experiment with it but not nearly as much as I did. If I were earlier along the curve I might do more, but maybe not. In India, it is used as part of a finite program, but not indefinitely. So we don't have long term data.

Don't expect your Doc to have much to say positive about it. Too many unknowns.

Thanks for your response and I did start this morning on a low dose of 2.5 ml.

I'll wait till just about bed time to give a full report of my experiences.

Good night sleep last night, first all week.

Up at 9:00 am, took 2.5 ml of Mucuna and waited for an hour and had breakfast.
Mucuna did not work and I waited 4 hours before taking another dose. 1:45 pm upped the dose to 5 ml. By the way, my right arm tells me if the PD drugs are working or not. If it's loose and I then my body isn't stiff and I can perform pretty well. I'm sure a lot of you have the same problem. By to my report, about 45 minutes after my 5.o dose i could feel my body getting more fluid. things looking good. 4:00 pm body is getting rigid again. Toughed it out till 5:45 pm and took a 7.5 ml dose. Things started happening right away. I felt sick in stomach and I got a little dizzy but things evened out after a while. The rigidity left my boy and till around 9:00 pm I felt pretty good.

I just took a 100/25 cardoba to finish out the day.

Now here's how I see it.

At the moment I'm typing with 2 hands, not well but it's working.

I found that 2.5 ml does nothing.

5.0 I could definitely feel the rigidity leaving my body to some extant.

The 7.5 ml dose made a lot of difference, I had an almost immediate response from the drug and it lasted a long time.

Tomorrow, I'm going to start with a 7.5 dose and see if it has the same effect as today. I hope it does and I want to see how long I can go without taking another one.

night everyone
sleep well, I'm off to bed as soon as my Habs loose again...sheeh!!!!!

To Sept08,
Please be careful in taking Zandopa or any kind of mucuna for that matter.
I know you're excited about it and very pleased to get some results right away. But this herb is very powerful and will build up in your system very quickly, especially if you're planning on taking 7.5 ml at a time. This is way to much, you're going to be overmedicated. Your body will react negatively.
Please take your time, let your body adjust to it slowly, gradually increasing it over weeks/months not days. And you should be reducing your other meds at the same time. Mucuna is as powerful, if not more so, than Sinemet.
In the past 3 years, I've tried a variety of mucuna suppliers, and I keep coming back to Zandopa. I find Zandopa works the best. It's not as powerful as some of the others, but it's easy to mix, inexpensive and besides I like the name "ZanDOPA".
I'm currently taking only 1/2 level teaspoon (2.5 ml) with 1/3 tablet (hard to break into 1/3's but it can be done) of Sinemet 200/50 CR 4 times a day. I can function for most of the day. I don't take anything in the evenings or when I sleep to give my body a break.
Three years ago, I was taking 5 tablets of Sinemet 200/50 CR a day with very little on time. I've had pd for 7 years now. I can still drive, walk, even dating again, etc. My main problem is speech, but that's getting better with my current Zandopa/Sinemet doses.
Just be careful and do it slowly.
EnJOY life,
Max

hello sept08,

thanks for taking on this project. here's one person who's going to follow your 'experiment' closely and with fingers crossed!

however, just to be sure i'm following you correctly, can you please confirm that you're taking the POWDER form of ZANDOPA? and if so, you're probably thinking grams (7.5g equals about 1 tablespoon) rather than milliliters ("ml")... ?

good luck!
ariela

Boy do I feel stun, you're correct it's grams and not mils. I still can't get my head around this metric stuff..

It is also the Powder form of Zanpoda that I am taking. I must tell you that since the doctor changed my dosage it's been a struggle. Right now, it's 1:30 am and although my man Cotour just lost his tittle in the UFC, I'm feeling pretty good. I'm typing with both hands and that's is always a good sign for me.

I'm glad you are taking interest in this little project here and I will report every day on my progress..

Good night
and keep the faith
Claude

Over a month ago I recieved from HerbsForever an order of Mucuna tablets.

I have to admit that I cant notice a difference whether I take 1/2, 1 or 2 tablets multiple times daily. The larger ammounts might make my tremor worse but it is really hard to tell. I dont even get beneficial side effects :-)

I have settled on a 1 tablet as first pill sometime in the morning.

Would a different product be recommended -Zandopa for instance ???

(each tablet contains 250mg standardized extract NLT 40% Aldopa)


take care ,,,ken

Thanks Max that is exactly what I needed to hear. I wanted to hear from other people that took this drug to give me guidance. I will reduce my intake to 2.5g starting tomorrow. Although the 2.5g dose didn't seem to have any effect, I will be more careful in the future. I guess I just got a little exited and your post brought me back to earth.

I will keep posting everyday and if anybody have more comments, please post them as I know next to nothing about this stuff.

And Max, I took my last dose at 5:45 pm and won't take another till I wake up in the morning. I think I will alternate, One powder and one pill.

Anyway
keep the faith
Claude