Parkinson's Disease Tulip


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Old 09-24-2007, 09:36 AM #1
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harley harley is offline
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Default PD Poetry

i have found that writing helps me more than anything deal with pd..does anyone else here write poetry?

I am Human

Please
do not look at me
as a type of curiosity
I am not at all what you see
I am nothing less than human

This body exuding hell
Is hiding something neath the shell
I know where my feelings dwell

I can show you I am human

Time attacks my dignity
And slowly drains simplicity
There is nothing done effortlessly
I stumble being human

My lips are sealed by pride
But the eyes will never hide
The tears that I have cried
Because I am human

The option was never mine
To plant this choking vine
And feel it as it twines
Round what it knows is human

Feed my weary soul
An acceptance of its toll
Realize my only goal
is to feel
I am human

©Laura Jeanne Dean

Living by Candlelight

When you have been living in a room with a
degenerative chronic illness for as long as I have,
you become enslaved in the reality of having to
adapt to the continual darkening of that room.

The light has faded for such a long time that it
is merely a memory that tickles numbing senses.
the shadows then begin to creep in kicking off
a survival instinct to light candles to be able to see.

The shadows grow bigger as the flames flicker
yet you must find comfort with them for sanity's sake
this is sufficient for awhile.
But, the disease progresses,
and soon it is difficult to even light a candle.
The darkness then becomes your home.

Then God in all of His glory extends to you His light

©Laura Jeanne Dean

The Truth of Two

There is something you need to hear
My attitude disguises my fear
I have not held you very near
And have blamed you for my fate

Inside of pain there is a door
Which I have closed to feeling more
It blinds me from your daily chore
And slams shut my desires gate

To walk this pace is not my choice
I strike out with venomous voice
With gestures being grandiose
To camouflage your search of me

Only now do I begin to know
That within you a sorrow grows
As the pace becomes very slow
My heart opens my eyes to see

Your feet callous when mine ache
Your mind quits when mine will not create
You stop motion when my world breaks
You share all of my heavy toll

I see my pain rise in your eyes
I hear you whimper when I cry
Each cherished moment cannot fly
Without brushing upon your soul

This path was not built for two
Navigation barely lets one through
Though my future is hidden from view
Today I feel your hand within mine

©Laura Jeanne Dean

A Poem For Chloe

Come here my little one.
Sit upon my lap and wipe away my clouds
so I can absorb the warmth of your sunshine.
Wrap your arms around my rigid frame
and show me your wonderful smile.
Today I will feel the joy of being your Grandma.

I long to watch you romp through my garden,
then join you to pick flowers when your legs tire.
There will be some to fill the vase
that is waiting for your magic touch on my table,
and a bouquet of your favorites
to bring home to share with Mommy.

When my body aches we will go in the house.
I have your blanket ready on the bed,
so we can lie comfortable as you tell me of your day.
If the pain closes my eyes,
I know you will not be afraid.
You will sing a beautiful solo to soothe me to sleep
and then join me with your head on my shoulder.

I will dream of being the Grandma I long to be.
My shuffled gait would not hinder us at all
as we run along the ocean beach
flying a colorful kite high in the sky.
The sandcastles we build will be magnificently huge,
full of seashells for doors and pebbles for windows.
When I awaken you still are dozing with contentment.

I look to you and whisper a thank you in your ear.
The love that is shown in your innocent gestures
keeps everything fresh and in perspective.
You show me how blessed my life really is
each time you spend a day with me
and say to me, "I love you Grandma."

Copyright © January 2002
Laura Jeanne Dean
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I have a post-encephalitic neurological disorder, but it does NOT have me!
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Old 09-24-2007, 12:18 PM #2
gaykir gaykir is offline
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These are wonderful!
Thanks so much for sharing them.
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